---
type: "Bill"
title: "GENETIC PRIVACY-INSURANCE"
description: "Amends the Genetic Information Privacy Act. Provides that long-term care and life insurance policies are among those for which an insurer may not seek information derived from genetic testing. Removes language specifying that a provision prohibiting an insurer from using or disclosing protected health information that is genetic information for underwriting purposes does not apply to insurers issuing long-term care policies."
jurisdiction: "us/states/il"
legislature: "Illinois General Assembly"
session: "101st"
identifier: "HB 2189"
citation: "Illinois HB 2189 (101st)"
classification: ["bill"]
subjects: []
status: "enacted"
primary_sponsors: []
version_count: 3
action_count: 41
vote_count: 2
first_action: "2019-02-07"
last_action: "2019-07-26"
source: "openstates"
source_identifier: "ocd-bill/0f1f3207-3adc-479d-9da6-6bcd676dc68c"
source_url: "http://ilga.gov/legislation/BillStatus.asp?DocNum=2189&GAID=15&DocTypeID=HB&LegId=117925&SessionID=108&GA=101"
source_hash: "01a6321daec57a6057049264fc225f0a6ddcdb7fd247e7db323480f087486785"
vintage: "2026-07-01"
source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
retrieved_at: "2026-07-06"
confidence: "reported"
tags: ["legislation", "bill", "us-il"]
---

# Illinois HB 2189 (101st) — GENETIC PRIVACY-INSURANCE

Amends the Genetic Information Privacy Act. Provides that long-term care and life insurance policies are among those for which an insurer may not seek information derived from genetic testing. Removes language specifying that a provision prohibiting an insurer from using or disclosing protected health information that is genetic information for underwriting purposes does not apply to insurers issuing long-term care policies.

## Version chain

The bill's text revisions, in order — the diff chain from filing to enrollment.

1. **Introduced** (filed) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=10100HB2189&GA=101&SessionId=108&DocTypeId=HB&LegID=117925&DocNum=2189&GAID=15&SpecSess=&Session=&print=true)
2. **Engrossed** (committee substitute) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=10100HB2189eng&GA=101&SessionId=108&DocTypeId=HB&LegID=117925&DocNum=2189&GAID=15&SpecSess=&Session=&print=true)
3. **Enrolled** (enrolled) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=10100HB2189enr&GA=101&SessionId=108&DocTypeId=HB&LegID=117925&DocNum=2189&GAID=15&SpecSess=&Session=&print=true)

## Votes

- Third Reading — **56–0** (pass) · upper
- Third Reading — **106–0** (pass) · lower

## Sponsors

- Allen Skillicorn — cosponsor (person)
- Antonio Muñoz — cosponsor (person)
- Carol Ammons — cosponsor (person)
- Gregory Harris — cosponsor (person)
- Jennifer Bertino-Tarrant — primary (person)
- Jonathan Carroll — cosponsor (person)
- Natalie A. Manley — primary (person)
- Rachelle Crowe — cosponsor (person)
- Steve Stadelman — cosponsor (person)

## Timeline

The legislative action history — every referral, reading, and vote.

- **2019-02-07** Filed with the Clerk by Rep. Natalie A. Manley `filing`
- **2019-02-07** First Reading `reading-1`
- **2019-02-07** Referred to Rules Committee `referral-committee`
- **2019-02-19** Added Co-Sponsor Rep. Gregory Harris
- **2019-02-19** Assigned to Insurance Committee `referral-committee`
- **2019-02-28** To Special Subcommittee (INS)
- **2019-02-28** House Committee Amendment No. 1 Filed with Clerk by Rep. Natalie A. Manley `amendment-introduction`
- **2019-02-28** House Committee Amendment No. 1 Referred to Rules Committee `referral-committee`
- **2019-03-05** House Committee Amendment No. 1 Rules Refers to Insurance Committee
- **2019-03-12** House Committee Amendment No. 1 Recommends Be Adopted Subcommittee/ Insurance Committee; by Voice Vote `committee-passage-favorable`
- **2019-03-12** Recommends Do Pass as Amended Subcommittee/ Insurance Committee; 003-000-000 `committee-passage`
- **2019-03-12** Reported Back To Insurance Committee;
- **2019-03-13** Added Chief Co-Sponsor Rep. Jonathan Carroll
- **2019-03-13** Chief Co-Sponsor Changed to Rep. Jonathan Carroll
- **2019-03-19** House Committee Amendment No. 1 Adopted in Insurance Committee; by Voice Vote `amendment-passage`
- **2019-03-19** Do Pass as Amended / Short Debate Insurance Committee; 019-000-000 `committee-passage`
- **2019-03-21** Placed on Calendar 2nd Reading - Short Debate
- **2019-03-26** Second Reading - Short Debate `reading-2`
- **2019-03-26** Placed on Calendar Order of 3rd Reading - Short Debate
- **2019-03-28** Added Chief Co-Sponsor Rep. Allen Skillicorn
- **2019-03-28** Third Reading - Short Debate - Passed 106-000-000 `reading-3, passage`
- **2019-03-28** Added Chief Co-Sponsor Rep. Carol Ammons
- **2019-04-03** Arrive in Senate `introduction`
- **2019-04-03** Placed on Calendar Order of First Reading April 4, 2019 `reading-1`
- **2019-04-04** Chief Senate Sponsor Sen. Jennifer Bertino-Tarrant
- **2019-04-04** First Reading `reading-1`
- **2019-04-04** Referred to Assignments `referral-committee`
- **2019-04-24** Assigned to Judiciary `referral-committee`
- **2019-05-02** Do Pass Judiciary; 009-000-000 `committee-passage`
- **2019-05-02** Placed on Calendar Order of 2nd Reading May 7, 2019
- **2019-05-14** Added as Alternate Co-Sponsor Sen. Rachelle Crowe
- **2019-05-16** Second Reading `reading-2`
- **2019-05-16** Placed on Calendar Order of 3rd Reading May 17, 2019
- **2019-05-16** Added as Alternate Co-Sponsor Sen. Steve Stadelman
- **2019-05-21** Added as Alternate Co-Sponsor Sen. Antonio Muñoz
- **2019-05-21** Third Reading - Passed; 056-000-000 `reading-3, passage`
- **2019-05-21** Passed Both Houses
- **2019-06-19** Sent to the Governor `executive-receipt`
- **2019-07-26** Governor Approved `executive-signature`
- **2019-07-26** Effective Date January 1, 2020
- **2019-07-26** Public Act . . . . . . . . . 101-0132 `became-law`

## Source

OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/0f1f3207-3adc-479d-9da6-6bcd676dc68c`. Confidence: reported (aggregated from official Illinois legislature records).