---
type: "Bill"
title: "Relates to establishing the rare disease advisory council"
description: "Establishes the rare disease advisory council; advise and consult on policy matters relating to rare disease; twenty-one appointed members."
jurisdiction: "us/states/ny"
legislature: "New York Legislature"
session: "2019-2020"
identifier: "A 5762"
citation: "New York A 5762 (2019-2020)"
classification: ["bill"]
subjects: []
status: "enacted"
primary_sponsors: ["PAULIN"]
version_count: 1
action_count: 14
vote_count: 2
first_action: "2019-02-19"
last_action: "2019-12-20"
source: "openstates"
source_identifier: "ocd-bill/c77af12f-0db9-4aac-a4a0-747294a98a95"
source_url: "http://www.nysenate.gov/legislation/bills/2019/A5762"
source_hash: "f3afeb6652df25bc6e3b1688afaa28a94b62d73019753a0c24ce4e086d1c05fa"
vintage: "2026-07-01"
source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
retrieved_at: "2026-07-06"
confidence: "reported"
tags: ["legislation", "bill", "us-ny"]
---

# New York A 5762 (2019-2020) — Relates to establishing the rare disease advisory council

Establishes the rare disease advisory council; advise and consult on policy matters relating to rare disease; twenty-one appointed members.

## Version chain

The bill's text revisions, in order — the diff chain from filing to enrollment.

1. **A5762** (committee substitute) — [source](http://assembly.state.ny.us/leg/?sh=printbill&bn=A5762&term=2019&Text=Y)

## Votes

- Floor Vote — **62–0** (pass) · upper
- Assembly Vote — **146–0** (pass) · lower

## Sponsors

- PAULIN — primary (person)

## Timeline

The legislative action history — every referral, reading, and vote.

- **2019-02-19** REFERRED TO HEALTH `referral-committee`
- **2019-04-02** REPORTED REFERRED TO WAYS AND MEANS `referral-committee`
- **2019-05-14** REPORTED
- **2019-05-16** ADVANCED TO THIRD READING CAL.350
- **2019-05-22** PASSED ASSEMBLY `passage`
- **2019-05-22** DELIVERED TO SENATE
- **2019-05-22** REFERRED TO FINANCE `referral-committee`
- **2019-06-04** SUBSTITUTED FOR S4497
- **2019-06-04** 3RD READING CAL.864
- **2019-06-04** PASSED SENATE `passage`
- **2019-06-04** RETURNED TO ASSEMBLY
- **2019-12-17** DELIVERED TO GOVERNOR `executive-receipt`
- **2019-12-20** SIGNED CHAP.719 `executive-signature`
- **2019-12-20** APPROVAL MEMO.66

## Source

OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/c77af12f-0db9-4aac-a4a0-747294a98a95`. Confidence: reported (aggregated from official New York legislature records).