--- type: "Bill" title: "Directs the department of health to convene a workgroup on rare diseases; repealer" description: "Directs the department of health to convene a workgroup on rare diseases." jurisdiction: "us/states/ny" legislature: "New York Legislature" session: "2019-2020" identifier: "S 7172" citation: "New York S 7172 (2019-2020)" classification: ["bill"] subjects: [] status: "enacted" primary_sponsors: ["RIVERA"] version_count: 1 action_count: 11 vote_count: 3 first_action: "2020-01-10" last_action: "2020-04-17" source: "openstates" source_identifier: "ocd-bill/577a2ed0-0d4b-438a-8ee6-f70aa06e8b8a" source_url: "http://www.nysenate.gov/legislation/bills/2019/S7172" source_hash: "8650b0166113b7153552809991bd58e1d83950f0b7846da02226e5be3e602aaa" vintage: "2026-07-01" source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump" retrieved_at: "2026-07-06" confidence: "reported" tags: ["legislation", "bill", "us-ny"] --- # New York S 7172 (2019-2020) — Directs the department of health to convene a workgroup on rare diseases; repealer Directs the department of health to convene a workgroup on rare diseases. ## Version chain The bill's text revisions, in order — the diff chain from filing to enrollment. 1. **S7172** (committee substitute) — [source](http://assembly.state.ny.us/leg/?sh=printbill&bn=S7172&term=2019&Text=Y) ## Votes - Rules Vote — **19–0** (pass) · upper - Floor Vote — **61–0** (pass) · upper - Assembly Vote — **143–0** (pass) · lower ## Sponsors - RIVERA — primary (person) ## Timeline The legislative action history — every referral, reading, and vote. - **2020-01-10** REFERRED TO RULES `referral-committee` - **2020-01-13** ORDERED TO THIRD READING CAL.96 - **2020-01-27** PASSED SENATE `passage` - **2020-01-27** DELIVERED TO ASSEMBLY - **2020-01-27** REFERRED TO HEALTH `referral-committee` - **2020-02-05** SUBSTITUTED FOR A9132 - **2020-02-05** ORDERED TO THIRD READING CAL.385 - **2020-02-05** PASSED ASSEMBLY `passage` - **2020-02-05** RETURNED TO SENATE - **2020-04-17** DELIVERED TO GOVERNOR `executive-receipt` - **2020-04-17** SIGNED CHAP.74 `executive-signature` ## Source OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/577a2ed0-0d4b-438a-8ee6-f70aa06e8b8a`. Confidence: reported (aggregated from official New York legislature records).