---
type: "Bill"
title: "AN ACT RELATING TO HEALTH AND SAFETY -- RARE DISEASE ADVISORY COUNCIL"
description: "Establishes a rare disease advisory council within the department of health and provides guidance and recommendations to educate health care providers and the citizens of the state."
jurisdiction: "us/states/ri"
legislature: "Rhode Island General Assembly"
session: "2025"
identifier: "HB 5023"
citation: "Rhode Island HB 5023 (2025)"
classification: ["bill"]
subjects: []
status: "enacted"
primary_sponsors: ["Azzinaro", "Carson", "Cotter", "Diaz", "Donovan", "Edwards", "Kazarian", "Kennedy", "Serpa", "Spears"]
version_count: 1
action_count: 12
vote_count: 1
first_action: "2025-01-10"
last_action: "2025-06-27"
source: "openstates"
source_identifier: "ocd-bill/377e6c32-fa6a-4890-baf2-b14789a7fe6a"
source_url: "https://status.rilegislature.gov/"
source_hash: "2a7be9d7fba03cd37d1d0d36c3350eb016e824ae4262a4d782d5c6b0bcd7b2bd"
vintage: "2026-07-01"
source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
retrieved_at: "2026-07-06"
confidence: "reported"
tags: ["legislation", "bill", "us-ri"]
---

# Rhode Island HB 5023 (2025) — AN ACT RELATING TO HEALTH AND SAFETY -- RARE DISEASE ADVISORY COUNCIL

Establishes a rare disease advisory council within the department of health and provides guidance and recommendations to educate health care providers and the citizens of the state.

## Version chain

The bill's text revisions, in order — the diff chain from filing to enrollment.

1. **5023 SUB A** (committee substitute) — [source](http://webserver.rilegislature.gov/BillText/BillText25/HouseText25/H5023A.pdf)

## Votes

- PASSAGE — **73–0** (pass) · lower

## Sponsors

- Azzinaro — primary (person)
- Carson — primary (person)
- Cotter — primary (person)
- Diaz — primary (person)
- Donovan — primary (person)
- Edwards — primary (person)
- Kazarian — primary (person)
- Kennedy — primary (person)
- Serpa — primary (person)
- Spears — primary (person)

## Timeline

The legislative action history — every referral, reading, and vote.

- **2025-01-10** 01/10/2025 Introduced, referred to House Health & Human Services `introduction, referral-committee`
- **2025-01-31** 01/31/2025 Scheduled for hearing and/or consideration (02/06/2025)
- **2025-02-06** 02/06/2025 Committee recommended measure be held for further study `committee-failure`
- **2025-06-10** 06/10/2025 Scheduled for consideration (06/12/2025)
- **2025-06-10** 06/10/2025 Proposed Substitute `substitution`
- **2025-06-12** 06/12/2025 Committee recommends passage of Sub A `committee-passage-favorable`
- **2025-06-13** 06/13/2025 Placed on House Calendar (06/16/2025) `reading-3`
- **2025-06-16** 06/16/2025 House passed Sub A `passage`
- **2025-06-19** 06/19/2025 Placed on Senate Calendar (06/20/2025) `reading-3`
- **2025-06-20** 06/20/2025 Senate passed Sub A in concurrence `passage`
- **2025-06-23** 06/23/2025 Transmitted to Governor `executive-receipt`
- **2025-06-27** 06/27/2025 Signed by Governor `executive-signature`

## Source

OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/377e6c32-fa6a-4890-baf2-b14789a7fe6a`. Confidence: reported (aggregated from official Rhode Island legislature records).