---
type: "Bill"
title: "An act relating to the Rare Disease Advisory Council"
description: "An act relating to the Rare Disease Advisory Council"
jurisdiction: "us/states/vt"
legislature: "Vermont General Assembly"
session: "2025-2026"
identifier: "H 46"
citation: "Vermont H 46 (2025-2026)"
classification: ["bill"]
subjects: []
status: "enacted"
primary_sponsors: ["Anne Donahue", "Daniel Noyes", "Mary-Katherine Stone"]
version_count: 9
action_count: 43
vote_count: 0
first_action: "2025-01-21"
last_action: "2026-05-19"
source: "openstates"
source_identifier: "ocd-bill/478a5139-41d4-4f5e-8624-d2f7423dcc19"
source_url: "http://legislature.vermont.gov/bill/loadBillDetailedStatus/2026/273"
source_hash: "d130effa7f5374e4d163f0cb9ef9f62a8cc814d57a9452af22f5d2b569c73062"
vintage: "2026-07-01"
source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
retrieved_at: "2026-07-06"
confidence: "reported"
tags: ["legislation", "bill", "us-vt"]
---

# Vermont H 46 (2025-2026) — An act relating to the Rare Disease Advisory Council

## Version chain

The bill's text revisions, in order — the diff chain from filing to enrollment.

1. **As Introduced** (filed) — [source](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046%20As%20Introduced.pdf)
2. **Act Summary** (committee substitute) — [source](https://legislature.vermont.gov/Documents/2026/Docs/ACTS/ACT098/ACT098%20Act%20Summary.pdf)
3. **As Enacted** (committee substitute) — [source](https://legislature.vermont.gov/Documents/2026/Docs/ACTS/ACT098/ACT098%20As%20Enacted.pdf)
4. **As Passed By the House (Official)** (committee substitute) — [source](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046%20As%20passed%20by%20the%20House%20Official.pdf)
5. **As Passed By the House (Unofficial)** (committee substitute) — [source](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046%20As%20Passed%20by%20the%20House%20Unofficial.pdf)
6. **As Passed by Both House and Senate (Official)** (committee substitute) — [source](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046%20As%20Passed%20by%20Both%20House%20and%20Senate%20Official.pdf)
7. **As Passed by Both House and Senate (Unofficial)** (committee substitute) — [source](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046%20As%20Passed%20by%20Both%20House%20and%20Senate%20Unofficial.pdf)
8. **Senate Proposal of Amendment (Official)** (committee substitute) — [source](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046%20Senate%20proposal%20of%20amendment%20Official.pdf)
9. **Senate Proposal of Amendment (Unofficial)** (committee substitute) — [source](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046%20Senate%20Proposal%20of%20Amendment%20Unofficial.pdf)

## Sponsors

- Anne Donahue — primary (person)
- Daniel Noyes — primary (person)
- Mary-Katherine Stone — primary (person)

## Timeline

The legislative action history — every referral, reading, and vote.

- **2025-01-21** Read first time and referred to the Committee on Human Services `introduction`
- **2025-05-06** Notice Calendar: Favorable with Amendment
- **2025-05-06** Referred to Committee on Appropriations per Rule 35(a)
- **2025-05-09** Notice Calendar: Favorable with Amendment
- **2025-05-12** Action Calendar: Favorable with Amendment
- **2025-05-13** Action Calendar: Unfinished Business
- **2025-05-13** Read second time `reading-2`
- **2025-05-13** Rep. Garofano of Essex reported for the Committee on Human Services
- **2025-05-13** Rep. Bluemle of Burlington recommended for the Committee on Appropriations
- **2025-05-13** Report of Committee on Human Services agreed to
- **2025-05-13** Third Reading ordered `reading-3`
- **2025-05-14** Action Calendar: Third Reading `reading-3`
- **2025-05-14** Read third time and passed `reading-3`
- **2025-05-16** Read 1st time & referred to Committee on Rules `introduction`
- **2026-01-06** Referred to Committee on Health and Welfare per Temporary Senate Rule 44A
- **2026-04-22** Entered on Notice Calendar
- **2026-04-22** Second Reading `reading-2`
- **2026-04-22** Favorable report with proposal of amendment by Committee on Health and Welfare `amendment-introduction`
- **2026-04-22** Referred to Committee on Appropriations per Senate Rule 31
- **2026-04-24** Entered on Notice Calendar
- **2026-04-24** Second Reading `reading-2`
- **2026-04-24** Favorable report with proposal of amendment by Committee on Health and Welfare `amendment-introduction`
- **2026-04-24** Favorable report by Committee on Appropriations `committee-passage`
- **2026-04-28** Second Reading `reading-2`
- **2026-04-28** Favorable report with proposal of amendment by Committee on Health and Welfare `amendment-introduction`
- **2026-04-28** Favorable report by Committee on Appropriations `committee-passage`
- **2026-04-29** Unfinished Business/Second Reading `reading-2`
- **2026-04-29** Favorable report with proposal of amendment by Committee on Health and Welfare `amendment-introduction`
- **2026-04-29** Favorable report by Committee on Appropriations `committee-passage`
- **2026-04-29** Read 2nd time, reported favorably with proposal of amendment by Senator Morley for Committee on Health and Welfare `amendment-introduction, committee-passage-favorable, reading-2`
- **2026-04-29** Reported favorably by Senator Lyons for Committee on Appropriations `committee-passage-favorable`
- **2026-04-29** Proposal of amendment by Committee on Health and Welfare agreed to `amendment-introduction`
- **2026-04-29** 3rd reading ordered
- **2026-04-30** New Business/Third Reading `reading-3`
- **2026-04-30** Read 3rd time & passed in concurrence with proposal of amendment `amendment-introduction, reading-3`
- **2026-05-01** Senate Message: Passed in concurrence with proposal of amendment `amendment-introduction`
- **2026-05-05** Notice Calendar: Senate Proposal of Amendment `amendment-introduction`
- **2026-05-06** Action Calendar: Senate Proposal of Amendment `amendment-introduction`
- **2026-05-06** Senate proposal of amendment concurred in `amendment-introduction`
- **2026-05-08** House message: House concurred in Senate proposal of amendment `amendment-introduction`
- **2026-05-12** Delivered to the Governor on May 12, 2026 `passage`
- **2026-05-18** Signed by Governor on May 18, 2026 `executive-signature`
- **2026-05-19** House message: Governor approved bill on May 18, 2026

## Source

OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/478a5139-41d4-4f5e-8624-d2f7423dcc19`. Confidence: reported (aggregated from official Vermont legislature records).