republic-os/legislation/us/states/de/152/sb-55.md

type, title, description, jurisdiction, legislature, session, identifier, citation, classification, subjects, status, primary_sponsors, version_count, action_count, vote_count, first_action, last_action, source, source_identifier, source_url, source_hash, vintage, source_snapshot, retrieved_at, confidence, tags

type	title	description	jurisdiction	legislature	session	identifier	citation	classification	subjects	status	primary_sponsors	version_count	action_count	vote_count	first_action	last_action	source	source_identifier	source_url	source_hash	vintage	source_snapshot	retrieved_at	confidence	tags
Bill	AN ACT TO AMEND TITLE 29 OF THE DELAWARE CODE ESTABLISHING THE DELAWARE RARE DISEASE ADVISORY COUNCIL.	This bill establishes the Delaware Rare Disease Advisory Council which, among other things, is intended to educate medical professionals, government agencies, legislators, and the public about rare diseases. There are about 7,000 known rare diseases, and they create major public health challenges. The Advisory Council is charged with engaging in activities intended to benefit rare disease patients in Delaware, including encouraging and securing funding for the development of new treatments for rare diseases.	us/states/de	Delaware General Assembly	152	SB 55	Delaware SB 55 (152)	bill		enacted	Brian Pettyjohn Darius J. Brown David L. Wilson David P. Sokola Kendra Johnson Marie Pinkney Michael Ramone Nicole Poore Paul S. Baumbach Peter C. Schwartzkopf Sarah McBride Sean Matthews Stell Parker Selby William J. Carson	2	9	2	2023-03-01	2023-07-26	openstates	ocd-bill/1ba7ffd3-b103-4b65-8314-2e76dee1db1e	https://legis.delaware.gov/BillDetail?LegislationId=130030	8a7cd6d37af7acc79ba0a9b49241fd842731c56a5569445723b9330361ebeac3	2026-07-01	https://data.openstates.org/daily/2026-07-01/public.pgdump	2026-07-06	reported	legislation bill us-de

Delaware SB 55 (152) — AN ACT TO AMEND TITLE 29 OF THE DELAWARE CODE ESTABLISHING THE DELAWARE RARE DISEASE ADVISORY COUNCIL.

This bill establishes the Delaware Rare Disease Advisory Council which, among other things, is intended to educate medical professionals, government agencies, legislators, and the public about rare diseases. There are about 7,000 known rare diseases, and they create major public health challenges. The Advisory Council is charged with engaging in activities intended to benefit rare disease patients in Delaware, including encouraging and securing funding for the development of new treatments for rare diseases.

Version chain

The bill's text revisions, in order — the diff chain from filing to enrollment.

1. Bill Text (committee substitute) — source
2. SA 1 to SB 55 (committee substitute) — source

Votes

• SM — 21–0 (pass) · upper
• 3/4 — 39–0 (pass) · lower

Sponsors

• Brian Pettyjohn — primary (person)
• Darius J. Brown — primary (person)
• David L. Wilson — primary (person)
• David P. Sokola — primary (person)
• Kendra Johnson — primary (person)
• Marie Pinkney — primary (person)
• Michael Ramone — primary (person)
• Nicole Poore — primary (person)
• Paul S. Baumbach — primary (person)
• Peter C. Schwartzkopf — primary (person)
• Sarah McBride — primary (person)
• Sean Matthews — primary (person)
• Stell Parker Selby — primary (person)
• William J. Carson — primary (person)

Timeline

The legislative action history — every referral, reading, and vote.

• 2023-03-01 Introduced and Assigned to Health & Social Services Committee in Senate introduction, referral-committee
• 2023-03-08 Reported Out of Committee (Health & Social Services) in Senate with 7 Favorable committee-passage, committee-passage-favorable
• 2023-06-01 Amendment SA 1 to SB 55 - Introduced and Placed With Bill amendment-introduction
• 2023-06-08 Amendment SA 1 to SB 55 - Passed By Senate. Votes: 20 YES 1 ABSENT amendment-passage
• 2023-06-08 Passed By Senate. Votes: 21 YES passage
• 2023-06-08 Assigned to Health & Human Development Committee in House introduction, referral-committee
• 2023-06-14 Reported Out of Committee (Health & Human Development) in House with 3 Favorable, 6 On Its Merits committee-passage, committee-passage-favorable
• 2023-06-20 Passed By House. Votes: 39 YES 2 ABSENT passage
• 2023-07-26 Signed by Governor executive-signature

Source

OpenStates / OpenCivicData bulk snapshot 2026-07-01; origin ocd-bill/1ba7ffd3-b103-4b65-8314-2e76dee1db1e. Confidence: reported (aggregated from official Delaware legislature records).