republic-os/legislation/us/states/ky/2025rs/sb-27.md

type, title, description, jurisdiction, legislature, session, identifier, citation, classification, subjects, status, primary_sponsors, version_count, action_count, vote_count, first_action, last_action, source, source_identifier, source_url, source_hash, vintage, source_snapshot, retrieved_at, confidence, tags

type	title	description	jurisdiction	legislature	session	identifier	citation	classification	subjects	status	primary_sponsors	version_count	action_count	vote_count	first_action	last_action	source	source_identifier	source_url	source_hash	vintage	source_snapshot	retrieved_at	confidence	tags
Bill	AN ACT relating to health care.	Create a new section of KRS Chapter 214 to define terms; establish the Kentucky Parkinson's Disease Research Registry within the Cabinet for Health and Family Services; direct the secretary of the cabinet to establish the Kentucky Parkinson's Disease Research Registry Advisory Committee and make appointments; require the cabinet to promulgate administrative regulations to designate Parkinson's disease and the identified Parkinsonisms as diseases that are required to be reported to the cabinet, establish a system of collection and dissemination of information on the incidence and prevalence of Parkinson's disease in Kentucky through the registry, identify data points to be collected, establish a coding system to safeguard patients' privacy, and develop guidelines for sharing registry data for research purposes; require the cabinet to collect and receive data for the registry; authorize the cabinet to enter into data-sharing contracts; require all health facilities and licensed health care providers to submit Parkinson's disease reports to the cabinet beginning on January 1, 2026; require facilities and providers to provide patients with notice of the submission of data to the registry and an opportunity to opt out of having their information shared; require the cabinet to make the registry data available to researchers in compliance with the Federal Policy for the Protection of Human Subjects and other federal and state privacy laws and regulations; authorize the sharing of data with other registries, agencies, and officers if confidentiality requirements are followed; provide that sharing of information in accordance with security and privacy requirements does not expose a person to liability; direct the cabinet to maintain an accurate record of all persons who have been granted access to registry data and make the record available to the public; state that nothing compels an individual to submit to any medical examination; prohibit researchers from contacting a patient or patient's family unless the cabinet has first obtained the patient's permission; require the cabinet to submit a yearly program summary update to the Interim Joint Committee on Health Services and establish a registry website where the public can access the report and other information on Parkinson's disease.	us/states/ky	Kentucky General Assembly	2025RS	SB 27	Kentucky SB 27 (2025RS)	bill	Administrative Regulations and Proceedings Advisory Boards Commissions and Committees Data Processing Diseases Health and Medical Services Hospitals and Nursing Homes Physicians and Practitioners Reports Mandated State Agencies	enacted		3	25	3	2025-01-07T05:00:00+00:00	2025-03-25T04:00:00+00:00	openstates	ocd-bill/be5e558e-34c2-483e-8f0f-68db33c08324	https://apps.legislature.ky.gov/record/25RS/sb27.html	0a9e686c115366bb2b075d01c7c0bb3f89f7963935d6c237f621f74aa4b0de33	2026-07-01	https://data.openstates.org/daily/2026-07-01/public.pgdump	2026-07-06	reported	legislation bill us-ky

Kentucky SB 27 (2025RS) — AN ACT relating to health care.

Create a new section of KRS Chapter 214 to define terms; establish the Kentucky Parkinson's Disease Research Registry within the Cabinet for Health and Family Services; direct the secretary of the cabinet to establish the Kentucky Parkinson's Disease Research Registry Advisory Committee and make appointments; require the cabinet to promulgate administrative regulations to designate Parkinson's disease and the identified Parkinsonisms as diseases that are required to be reported to the cabinet, establish a system of collection and dissemination of information on the incidence and prevalence of Parkinson's disease in Kentucky through the registry, identify data points to be collected, establish a coding system to safeguard patients' privacy, and develop guidelines for sharing registry data for research purposes; require the cabinet to collect and receive data for the registry; authorize the cabinet to enter into data-sharing contracts; require all health facilities and licensed health care providers to submit Parkinson's disease reports to the cabinet beginning on January 1, 2026; require facilities and providers to provide patients with notice of the submission of data to the registry and an opportunity to opt out of having their information shared; require the cabinet to make the registry data available to researchers in compliance with the Federal Policy for the Protection of Human Subjects and other federal and state privacy laws and regulations; authorize the sharing of data with other registries, agencies, and officers if confidentiality requirements are followed; provide that sharing of information in accordance with security and privacy requirements does not expose a person to liability; direct the cabinet to maintain an accurate record of all persons who have been granted access to registry data and make the record available to the public; state that nothing compels an individual to submit to any medical examination; prohibit researchers from contacting a patient or patient's family unless the cabinet has first obtained the patient's permission; require the cabinet to submit a yearly program summary update to the Interim Joint Committee on Health Services and establish a registry website where the public can access the report and other information on Parkinson's disease.

Version chain

The bill's text revisions, in order — the diff chain from filing to enrollment.

1. Introduced (filed) — source
2. Acts Chapter 85 (committee substitute) — source
3. Current/Final (committee substitute) — source

Votes

• Pass — 87–0 (pass) · upper
• Final Passage SB 27 W/ hcs1 hfa1 hcta1 — 36–0 (pass) · upper
• PASS SB 27 W/ scs1 — 34–0 (pass) · upper

Timeline

The legislative action history — every referral, reading, and vote.

• 2025-01-07T05:00:00+00:00 introduced in Senate introduction
• 2025-01-07T05:00:00+00:00 to Committee on Committees (S) referral-committee
• 2025-01-09T05:00:00+00:00 to Health Services (S) referral-committee
• 2025-02-26T05:00:00+00:00 reported favorably, 1st reading, to Calendar with Committee Substitute (1) committee-passage
• 2025-02-27T05:00:00+00:00 2nd reading, to Rules reading-2
• 2025-02-27T05:00:00+00:00 posted for passage in the Regular Orders of the Day for Friday, February 28, 2025
• 2025-02-28T05:00:00+00:00 3rd reading, passed 34-0 with Committee Substitute (1) passage, reading-3
• 2025-03-04T05:00:00+00:00 received in House
• 2025-03-04T05:00:00+00:00 to Committee on Committees (H) referral-committee
• 2025-03-11T04:00:00+00:00 to Health Services (H) referral-committee
• 2025-03-12T04:00:00+00:00 reported favorably, 1st reading, to Calendar with Committee Substitute (1), and Committee Amendment (1-title) committee-passage
• 2025-03-13T04:00:00+00:00 2nd reading, to Rules reading-2
• 2025-03-13T04:00:00+00:00 floor amendment (1) filed to Committee Substitute amendment-introduction
• 2025-03-14T04:00:00+00:00 taken from Rules
• 2025-03-14T04:00:00+00:00 placed in the Orders of the Day
• 2025-03-14T04:00:00+00:00 3rd reading, passed 87-0 with Committee Substitute (1), Floor Amendment (1), and Committee Amendment (1-title) passage, reading-3
• 2025-03-14T04:00:00+00:00 received in Senate
• 2025-03-14T04:00:00+00:00 to Rules (S) referral-committee
• 2025-03-14T04:00:00+00:00 posted for passage for concurrence in House Floor Amendment (1), Committee Substitute (1), and Committee Amendment (1-title)
• 2025-03-14T04:00:00+00:00 Senate concurred in House amendment Committee Substitute (1), Floor Amendment (1), and Committee Amendment (1-title)
• 2025-03-14T04:00:00+00:00 passed 36-0 passage
• 2025-03-14T04:00:00+00:00 enrolled, signed by President of the Senate passage
• 2025-03-14T04:00:00+00:00 enrolled, signed by Speaker of the House passage
• 2025-03-14T04:00:00+00:00 delivered to Governor
• 2025-03-25T04:00:00+00:00 signed by Governor (Acts Ch. 85) executive-signature

Source

OpenStates / OpenCivicData bulk snapshot 2026-07-01; origin ocd-bill/be5e558e-34c2-483e-8f0f-68db33c08324. Confidence: reported (aggregated from official Kentucky legislature records).