Fabio
4.2 KiB
type, title, description, jurisdiction, legislature, session, identifier, citation, classification, subjects, status, primary_sponsors, version_count, action_count, vote_count, first_action, last_action, source, source_identifier, source_url, source_hash, vintage, source_snapshot, retrieved_at, confidence, tags
| type | title | description | jurisdiction | legislature | session | identifier | citation | classification | subjects | status | primary_sponsors | version_count | action_count | vote_count | first_action | last_action | source | source_identifier | source_url | source_hash | vintage | source_snapshot | retrieved_at | confidence | tags | |||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Bill | Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry | Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto. | us/states/ny | New York Legislature | 2025-2026 | A 7845 | New York A 7845 (2025-2026) |
|
enacted |
|
1 | 16 | 2 | 2025-04-11 | 2025-10-17 | openstates | ocd-bill/7272a907-a14d-457b-88c7-5cc187a73b63 | http://www.nysenate.gov/legislation/bills/2025/A7845 | d2acce4d3c4b908a3ddc6ebb5011003ef8aeb08b53953508a04023e40d13ff86 | 2026-07-01 | https://data.openstates.org/daily/2026-07-01/public.pgdump | 2026-07-06 | reported |
|
New York A 7845 (2025-2026) — Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry
Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.
Version chain
The bill's text revisions, in order — the diff chain from filing to enrollment.
- A7845 (committee substitute) — source
Votes
- Floor Vote — 58–0 (pass) · upper
- Assembly Vote — 139–0 (pass) · lower
Sponsors
- Steve Stern — primary (person)
- Harvey Epstein — cosponsor (person)
- MaryJane Shimsky — cosponsor (person)
- Micah Lasher — cosponsor (person)
- Nader Sayegh — cosponsor (person)
- Rebecca Seawright — cosponsor (person)
- Steven Otis — cosponsor (person)
Timeline
The legislative action history — every referral, reading, and vote.
- 2025-04-11 REFERRED TO HEALTH
referral-committee - 2025-05-19 REPORTED REFERRED TO CODES
referral-committee - 2025-05-28 REPORTED REFERRED TO WAYS AND MEANS
referral-committee - 2025-05-29 REPORTED REFERRED TO RULES
referral-committee - 2025-06-06 REPORTED
- 2025-06-06 RULES REPORT CAL.455
- 2025-06-06 ORDERED TO THIRD READING RULES CAL.455
- 2025-06-06 PASSED ASSEMBLY
passage - 2025-06-06 DELIVERED TO SENATE
- 2025-06-06 REFERRED TO RULES
referral-committee - 2025-06-10 SUBSTITUTED FOR S6413
- 2025-06-10 3RD READING CAL.1540
- 2025-06-10 PASSED SENATE
passage - 2025-06-10 RETURNED TO ASSEMBLY
- 2025-10-09 DELIVERED TO GOVERNOR
executive-receipt - 2025-10-17 SIGNED CHAP.478
executive-signature
Source
OpenStates / OpenCivicData bulk snapshot 2026-07-01; origin ocd-bill/7272a907-a14d-457b-88c7-5cc187a73b63. Confidence: reported (aggregated from official New York legislature records).