republic-os/legislation/us/states/va/2021/hb-1995.md

type, title, description, jurisdiction, legislature, session, identifier, citation, classification, subjects, status, primary_sponsors, version_count, action_count, vote_count, first_action, last_action, source, source_identifier, source_url, source_hash, vintage, source_snapshot, retrieved_at, confidence, tags

type	title	description	jurisdiction	legislature	session	identifier	citation	classification	subjects	status	primary_sponsors	version_count	action_count	vote_count	first_action	last_action	source	source_identifier	source_url	source_hash	vintage	source_snapshot	retrieved_at	confidence	tags
Bill	Rare Disease Council and Rare Disease Council Fund; created, report.	Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council.	us/states/va	Virginia General Assembly	2021	HB 1995	Virginia HB 1995 (2021)	bill		enacted	Kathleen Murphy	4	35	11	2021-01-11	2021-03-24	openstates	ocd-bill/960260d6-278c-4a53-b182-8b97e31287a8	https://lis.virginia.gov/cgi-bin/legp604.exe?212+sum+HB1995	c76b38a349df595dbd7e4ba16426023e0a5b42e1082b025400eb819e3395b259	2026-07-01	https://data.openstates.org/daily/2026-07-01/public.pgdump	2026-07-06	reported	legislation bill us-va

Virginia HB 1995 (2021) — Rare Disease Council and Rare Disease Council Fund; created, report.

Rare Disease Council and Rare Disease Council Fund; report. Creates the Rare Disease Council for the purpose of (i) advising the Governor and the General Assembly on the needs of individuals with rare diseases in the Commonwealth; (ii) identifying challenges that such individuals face, including delays in obtaining a diagnosis or the receipt of a misdiagnosis, shortages of medical specialists who can provide treatment, and lack of access to therapies and medication used to treat rare diseases; (iii) funding research related to rare diseases and the development of new treatments for rare diseases; and (iv) funding for supports for persons with rare diseases in the Commonwealth. The bill also creates the Rare Disease Council Fund to be used for the purpose of (a) funding research related to rare diseases and the development of new treatments for rare diseases and supports for persons with rare diseases in the Commonwealth and (b) supporting the work of the Rare Disease Council.

Version chain

The bill's text revisions, in order — the diff chain from filing to enrollment.

1. CHAP0303 (committee substitute) — source
2. Committee substitute printed 21103655D-H1 (committee substitute) — source
3. HB1995ER (committee substitute) — source
4. Prefiled and ordered printed; offered 01/13/21 21101216D (committee substitute) — source

Votes

• Reconsideration of Senate passage agreed to by Senate (39-Y 0-N) — 39–0 (pass) · upper
• Reported from Appropriations with substitute (22-Y 0-N) — 22–0 (pass) · lower
• Passed Senate (38-Y 0-N) — 38–0 (pass) · upper
• VOTE: Block Vote Passage (100-Y 0-N) — 99–0 (pass) · lower
• Reported from Health, Welfare and Institutions (20-Y 0-N) — 20–0 (pass) · lower
• Constitutional reading dispensed (39-Y 0-N) — 39–0 (pass) · upper
• Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N) — 15–0 (pass) · upper
• Reported from Education and Health (14-Y 0-N) — 14–0 (pass) · upper
• Reported from Finance and Appropriations (16-Y 0-N) — 16–0 (pass) · upper
• Subcommittee recommends reporting with substitute (7-Y 0-N) — 7–0 (pass) · lower
• Passed Senate (39-Y 0-N) — 39–0 (pass) · upper

Sponsors

• Kathleen Murphy — primary (person)
• Danica A. Roem — cosponsor (person)
• David A. Reid — cosponsor (person)
• Dawn M. Adams — cosponsor (person)
• Kenneth R. Plum — cosponsor (person)
• Lee J. Carter — cosponsor (person)
• Marcus B. Simon — cosponsor (person)
• Mark H. Levine — cosponsor (person)
• Mark L. Keam — cosponsor (person)
• Patrick A. Hope — cosponsor (person)
• Shelly A. Simonds — cosponsor (person)
• Suhas Subramanyam — cosponsor (person)

Timeline

The legislative action history — every referral, reading, and vote.

• 2021-01-11 Prefiled and ordered printed; offered 01/13/21 21101216D introduction
• 2021-01-11 Referred to Committee on Health, Welfare and Institutions referral-committee
• 2021-01-18 Impact statement from DPB (HB1995)
• 2021-01-19 Reported from Health, Welfare and Institutions (20-Y 0-N) committee-passage
• 2021-01-19 Referred to Committee on Appropriations referral-committee
• 2021-01-19 Assigned App. sub: Health & Human Resources referral-committee
• 2021-01-25 House subcommittee amendments and substitutes offered
• 2021-01-25 Subcommittee recommends reporting with substitute (7-Y 0-N)
• 2021-01-25 Reported from Appropriations with substitute (22-Y 0-N) committee-passage
• 2021-01-25 Committee substitute printed 21103655D-H1 substitution
• 2021-01-26 Read first time reading-1
• 2021-01-26 Impact statement from DPB (HB1995H1)
• 2021-01-27 Read second time reading-2
• 2021-01-27 Committee substitute agreed to 21103655D-H1
• 2021-01-27 Engrossed by House - committee substitute HB1995H1
• 2021-01-28 Read third time and passed House BLOCK VOTE (100-Y 0-N) passage, reading-3
• 2021-01-28 VOTE: Block Vote Passage (100-Y 0-N)
• 2021-01-29 Constitutional reading dispensed
• 2021-01-29 Referred to Committee on Education and Health referral-committee
• 2021-02-05 Continued to 2021 Sp. Sess. 1 in Education and Health (15-Y 0-N)
• 2021-02-11 Reported from Education and Health (14-Y 0-N) committee-passage
• 2021-02-11 Rereferred to Finance and Appropriations referral-committee
• 2021-02-17 Constitutional reading dispensed (39-Y 0-N)
• 2021-02-17 Reported from Finance and Appropriations (16-Y 0-N) committee-passage
• 2021-02-18 Read third time reading-3
• 2021-02-18 Passed Senate (38-Y 0-N) passage
• 2021-02-18 Reconsideration of Senate passage agreed to by Senate (39-Y 0-N)
• 2021-02-18 Passed Senate (39-Y 0-N) passage
• 2021-02-22 Enrolled
• 2021-02-22 Impact statement from DPB (HB1995ER)
• 2021-02-22 Signed by President
• 2021-02-24 Signed by Speaker
• 2021-02-25 Enrolled Bill communicated to Governor on February 25, 2021
• 2021-02-25 Governor's Action Deadline 11:59 p.m., March 31, 2021
• 2021-03-24 Approved by Governor-Chapter 303 (effective 7/1/21) executive-signature

Source

OpenStates / OpenCivicData bulk snapshot 2026-07-01; origin ocd-bill/960260d6-278c-4a53-b182-8b97e31287a8. Confidence: reported (aggregated from official Virginia legislature records).