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LegalText 42 U.S.C. § 300cc17 Information services us united_states_code code_section 42 THE PUBLIC HEALTH AND WELFARE 6A PUBLIC HEALTH SERVICE 300cc17 42 U.S.C. § 300cc17 current 119-100 2026-06-26 official https://uscode.house.gov/download/releasepoints/us/pl/119/100/xml_usc42@119-100.zip /us/usc/t42/s300cc17 data/legal/raw/us/code/title-42/usc42.xml f3967201ece9d189ce126d7223d8f8e2b12a91ff5c149c2b8ec37ab80638fed4 644321055a08eb1f260a6a3e31ac157fa024756abf612a9fd6857e7e400cf24e ad3b55a3129fa272fea621b24ba9f620a0ff39445557bcc961285792c30e2d43 2026-07-04 official
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42 U.S.C. § 300cc17 - Information services

Text

(a) Establishment of program The Secretary shall establish, maintain, and operate a program with respect to information on research, treatment, and prevention activities relating to infection with the etiologic agent for acquired immune deficiency syndrome. The program shall, with respect to the agencies of the Department of Health and Human Services, be integrated and coordinated.

(b) Toll-free telephone communications for health care entities (1) After consultation with the Director of the Office of AIDS Research, the Administrator of the Health Resources and Services Administration, and the Director of the Centers for Disease Control and Prevention, the Secretary shall provide for toll-free telephone communications to provide medical and technical information with respect to acquired immune deficiency syndrome to health care professionals, allied health care providers, and to professionals providing emergency health services.

(2) Information provided pursuant to paragraph (1) shall include—

(A) information on prevention of exposure to, and the transmission of, the etiologic agent for acquired immune deficiency syndrome; and

(B) information contained in the data banks established in subsections (c) and (d).

(c) Data bank on research information (1) After consultation with the Director of the Office of AIDS Research, the Director of the Centers for Disease Control and Prevention, and the National Library of Medicine, the Secretary shall establish a data bank of information on the results of research with respect to acquired immune deficiency syndrome conducted in the United States and other countries.

(2) In carrying out paragraph (1), the Secretary shall collect, catalog, store, and disseminate the information described in such paragraph. To the extent practicable, the Secretary shall make such information available to researchers, physicians, and other appropriate individuals, of countries other than the United States.

(d) Data bank on clinical trials and treatments (1) After consultation with the Commissioner of Food and Drugs, the AIDS Research Advisory Committee established under section 300cc3 of this title, and the Director of the Office of AIDS Research, the Secretary shall, in carrying out subsection (a), establish a data bank of information on clinical trials and treatments with respect to infection with the etiologic agent for acquired immune deficiency syndrome (hereafter in this section referred to as the “Data Bank”).

(2) In carrying out paragraph (1), the Secretary shall collect, catalog, store, and disseminate the information described in such paragraph. The Secretary shall disseminate such information through information systems available to individuals infected with the etiologic agent for acquired immune deficiency syndrome, to other members of the public, to health care providers, and to researchers.

(e) Requirements with respect to data bank on clinical trials and treatments The Data Bank shall include the following:

(1) A registry of clinical trials of experimental treatments for acquired immune deficiency syndrome and related illnesses conducted under regulations promulgated pursuant to section 355 of title 21 that provides a description of the purpose of each experimental drug protocol either with the consent of the protocol sponsor, or when a trial to test efficacy begins. Information provided shall include eligibility criteria and the location of trial sites, and must be forwarded to the Data Bank by the sponsor of the trial not later than 21 days after the approval by the Food and Drug Administration.

(2) Information pertaining to experimental treatments for acquired immune deficiency syndrome that may be available under a treatment investigational new drug application that has been submitted to the Food and Drug Administration pursuant to part 312 of title 21, Code of Federal Regulations. The Data Bank shall also include information pertaining to the results of clinical trials of such treatments, with the consent of the sponsor, of such experimental treatments, including information concerning potential toxicities or adverse effects associated with the use or administration of such experimental treatment.

(July 1, 1944, ch. 373, title XXIII, § 2317, as added Pub. L. 100607, title II, § 201(4), Nov. 4, 1988, 102 Stat. 3071; amended Pub. L. 100690, title II, § 2617(c), Nov. 18, 1988, 102 Stat. 4240; Pub. L. 102531, title III, § 312(d)(19), Oct. 27, 1992, 106 Stat. 3505; Pub. L. 10343, title XX, § 2008(d)(4), June 10, 1993, 107 Stat. 212.)

Notes

Editorial Notes

Amendments1993—Subsec. (d)(1). Pub. L. 10343 substituted “AIDS Research Advisory Committee established under section 300cc3 of this title” for “Clinical Research Review Committee”. 1992—Subsecs. (b)(1), (c)(1). Pub. L. 102531 substituted “Centers for Disease Control and Prevention” for “Centers for Disease Control”. 1988—Subsec. (e). Pub. L. 100690 substituted “data bank on clinical trials and treatments” for “data bank” in heading.

Statutory Notes and Related Subsidiaries

Effective Date of 1988 AmendmentAmendment by Pub. L. 100690 effective immediately after enactment of Pub. L. 100607, which was approved Nov. 4, 1988, see section 2600 of Pub. L. 100690, set out as a note under section 242m of this title.