Fabio
130 lines
9.3 KiB
Markdown
130 lines
9.3 KiB
Markdown
---
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type: "Bill"
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title: "PEDIATRIC PALLIATIVE CARE"
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description: "Amends the Illinois Public Aid Code. Provides that the medical assistance program shall cover community-based pediatric palliative care from a trained interdisciplinary team. Amends the Pediatric Palliative Care Act. Repeals a provision that made the Act inoperative on and after July 1, 2012. Requires the Department of Healthcare and Family Services to develop a pediatric palliative care program (rather than a pediatric palliative care pilot program) under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team and may also choose to continue to pursue aggressive curative or disease-directed treatments for a serious (rather than a potentially life-limiting) illness under the benefits available under the Illinois Public Aid Code. Defines a qualifying child to be a person under the age of 19 (rather than 18) who is enrolled in the medical assistance program and suffers from a serious illness (rather than a potentially life-limiting medical condition). Contains provisions concerning a State Plan amendment; prohibited Department rules; pediatric interdisciplinary teams; reimbursable services offered under the pediatric palliative care program; standards for and technical assistance to managed care organizations; reporting requirements; criteria a case manager must meet for demonstrated expertise in pediatric palliative care; and other matters."
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jurisdiction: "us/states/il"
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legislature: "Illinois General Assembly"
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session: "102nd"
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identifier: "SB 2384"
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citation: "Illinois SB 2384 (102nd)"
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classification: ["bill"]
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subjects: []
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status: "enacted"
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primary_sponsors: ["Laura Fine", "Robyn Gabel"]
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version_count: 5
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action_count: 56
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vote_count: 3
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first_action: "2021-02-26"
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last_action: "2021-08-27"
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source: "openstates"
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source_identifier: "ocd-bill/b61e68d5-1953-49b8-aa30-762b26622df3"
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source_url: "https://ilga.gov/legislation/BillStatus.asp?DocNum=2384&GAID=16&DocTypeID=SB&LegId=135038&SessionID=110&GA=102"
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source_hash: "0ea42a063c2b62eda2ca2001cd1f686914cea08a2dba6a94d2a9b3fa30d3064c"
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vintage: "2026-07-01"
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source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
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retrieved_at: "2026-07-06"
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confidence: "reported"
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tags: ["legislation", "bill", "us-il"]
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---
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# Illinois SB 2384 (102nd) — PEDIATRIC PALLIATIVE CARE
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Amends the Illinois Public Aid Code. Provides that the medical assistance program shall cover community-based pediatric palliative care from a trained interdisciplinary team. Amends the Pediatric Palliative Care Act. Repeals a provision that made the Act inoperative on and after July 1, 2012. Requires the Department of Healthcare and Family Services to develop a pediatric palliative care program (rather than a pediatric palliative care pilot program) under which a qualifying child may receive community-based pediatric palliative care from a trained interdisciplinary team and may also choose to continue to pursue aggressive curative or disease-directed treatments for a serious (rather than a potentially life-limiting) illness under the benefits available under the Illinois Public Aid Code. Defines a qualifying child to be a person under the age of 19 (rather than 18) who is enrolled in the medical assistance program and suffers from a serious illness (rather than a potentially life-limiting medical condition). Contains provisions concerning a State Plan amendment; prohibited Department rules; pediatric interdisciplinary teams; reimbursable services offered under the pediatric palliative care program; standards for and technical assistance to managed care organizations; reporting requirements; criteria a case manager must meet for demonstrated expertise in pediatric palliative care; and other matters.
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## Version chain
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The bill's text revisions, in order — the diff chain from filing to enrollment.
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1. **Introduced** (filed) — [source](https://ilga.gov/legislation/102/SB/PDF/10200SB2384.pdf)
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2. **Engrossed** (committee substitute) — [source](https://ilga.gov/legislation/102/SB/PDF/10200SB2384eng.pdf)
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3. **House Amendment 001** (committee substitute) — [source](https://ilga.gov/legislation/102/SB/PDF/10200SB2384ham001.pdf)
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4. **House Amendment 002** (committee substitute) — [source](https://ilga.gov/legislation/102/SB/PDF/10200SB2384ham002.pdf)
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5. **Enrolled** (enrolled) — [source](https://ilga.gov/legislation/102/SB/PDF/10200SB2384enr.pdf)
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## Votes
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- Third Reading — **113–0** (pass) · lower
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- Third Reading — **58–0** (pass) · upper
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- Concurrence, Amendment 2 — **58–0** (pass) · upper
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## Sponsors
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- Laura Fine — primary (person)
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- Robyn Gabel — primary (person)
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- Dale Fowler — cosponsor (person)
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- Elizabeth Hernandez — cosponsor (person)
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- Jehan Gordon-Booth — cosponsor (person)
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- Jonathan Carroll — cosponsor (person)
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- Julie A. Morrison — cosponsor (person)
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- Keith R. Wheeler — cosponsor (person)
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- Laura M. Murphy — cosponsor (person)
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- Margaret Croke — cosponsor (person)
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- Robert Rita — cosponsor (person)
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- Sara Feigenholtz — cosponsor (person)
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## Timeline
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The legislative action history — every referral, reading, and vote.
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- **2021-02-26** Filed with Secretary by Sen. Laura Fine `filing`
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- **2021-02-26** First Reading `reading-1`
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- **2021-02-26** Referred to Assignments `referral-committee`
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- **2021-03-04** Added as Chief Co-Sponsor Sen. Julie A. Morrison
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- **2021-03-23** Assigned to Health `referral-committee`
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- **2021-03-31** To Subcommittee on Medicaid
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- **2021-04-07** Reported Back To Health; 005-000-000
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- **2021-04-14** Do Pass Health; 014-000-000 `committee-passage`
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- **2021-04-14** Placed on Calendar Order of 2nd Reading April 15, 2021
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- **2021-04-19** Added as Co-Sponsor Sen. Dale Fowler
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- **2021-04-20** Added as Co-Sponsor Sen. Sara Feigenholtz
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- **2021-04-20** Second Reading `reading-2`
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- **2021-04-20** Placed on Calendar Order of 3rd Reading ** April 21, 2021
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- **2021-04-23** Third Reading - Passed; 058-000-000 `passage, reading-3`
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- **2021-04-26** Arrived in House `introduction`
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- **2021-04-26** Chief House Sponsor Rep. Robyn Gabel
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- **2021-04-27** First Reading `reading-1`
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- **2021-04-27** Referred to Rules Committee `referral-committee`
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- **2021-05-04** Assigned to Executive Committee `referral-committee`
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- **2021-05-05** Added Alternate Co-Sponsor Rep. Margaret Croke
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- **2021-05-12** Added Alternate Co-Sponsor Rep. Elizabeth Hernandez
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- **2021-05-15** Rule 19(a) / Re-referred to Rules Committee `referral-committee`
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- **2021-05-19** Committee/Final Action Deadline Extended-9(b) May 28, 2021
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- **2021-05-19** Assigned to Executive Committee `referral-committee`
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- **2021-05-19** House Committee Amendment No. 1 Filed with Clerk by Rep. Robyn Gabel `amendment-introduction`
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- **2021-05-19** House Committee Amendment No. 1 Referred to Rules Committee `referral-committee`
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- **2021-05-25** Added Alternate Co-Sponsor Rep. Jonathan Carroll
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- **2021-05-25** Added Alternate Co-Sponsor Rep. Jehan Gordon-Booth
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- **2021-05-25** Added Alternate Co-Sponsor Rep. Keith R. Wheeler
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- **2021-05-25** Added Alternate Co-Sponsor Rep. Robert Rita
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- **2021-05-25** Do Pass / Short Debate Executive Committee; 013-000-000 `committee-passage`
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- **2021-05-25** Placed on Calendar 2nd Reading - Short Debate
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- **2021-05-25** House Committee Amendment No. 1 Tabled Pursuant to Rule 40 `amendment-failure`
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- **2021-05-26** Second Reading - Short Debate `reading-2`
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- **2021-05-26** Held on Calendar Order of Second Reading - Short Debate `reading-2`
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- **2021-05-28** House Floor Amendment No. 2 Filed with Clerk by Rep. Robyn Gabel `amendment-introduction`
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- **2021-05-28** House Floor Amendment No. 2 Referred to Rules Committee `referral-committee`
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- **2021-05-28** Final Action Deadline Extended-9(b) May 31, 2021
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- **2021-05-29** House Floor Amendment No. 2 Recommends Be Adopted Rules Committee; 004-000-000 `committee-passage-favorable`
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- **2021-05-29** House Floor Amendment No. 2 Adopted `amendment-passage`
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- **2021-05-29** Placed on Calendar Order of 3rd Reading - Short Debate
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- **2021-05-29** Third Reading - Short Debate - Passed 113-000-000 `passage, reading-3`
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- **2021-05-29** Secretary's Desk - Concurrence House Amendment(s) 2
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- **2021-05-29** Placed on Calendar Order of Concurrence House Amendment(s) 2 - May 30, 2021
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- **2021-05-29** House Floor Amendment No. 2 Motion to Concur Filed with Secretary Sen. Laura Fine `filing`
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- **2021-05-29** House Floor Amendment No. 2 Motion to Concur Referred to Assignments `referral-committee`
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- **2021-05-30** House Floor Amendment No. 2 Motion to Concur Assignments Referred to Health `referral-committee`
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- **2021-05-30** House Floor Amendment No. 2 Motion To Concur Recommended Do Adopt Health; 009-000-000
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- **2021-05-30** House Floor Amendment No. 2 Senate Concurs 058-000-000
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- **2021-05-30** Senate Concurs
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- **2021-05-30** Passed Both Houses
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- **2021-06-01** Added as Co-Sponsor Sen. Laura M. Murphy
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- **2021-06-28** Sent to the Governor `executive-receipt`
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- **2021-08-27** Governor Approved `executive-signature`
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- **2021-08-27** Effective Date January 1, 2022
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- **2021-08-27** Public Act . . . . . . . . . 102-0655 `became-law`
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## Source
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OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/b61e68d5-1953-49b8-aa30-762b26622df3`. Confidence: reported (aggregated from official Illinois legislature records).
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