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republic-os/legislation/us/states/il/99th/hb-4576.md
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Fabio 5941153bb7 Legislation: batch B — IL IN KS KY LA MA MD ME MI MN 
Co-Authored-By: Claude Opus 4.8 <noreply@anthropic.com>
2026-07-06 17:27:20 -04:00

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type, title, description, jurisdiction, legislature, session, identifier, citation, classification, subjects, status, primary_sponsors, version_count, action_count, vote_count, first_action, last_action, source, source_identifier, source_url, source_hash, vintage, source_snapshot, retrieved_at, confidence, tags
type title description jurisdiction legislature session identifier citation classification subjects status primary_sponsors version_count action_count vote_count first_action last_action source source_identifier source_url source_hash vintage source_snapshot retrieved_at confidence tags
Bill RARE DISEASE COMMISSION Creates the Rare Disease Commission Act. Provides for the creation of the Rare Disease Commission. Defines terms. Provides that initial appointments shall be made by February 1, 2017. Provides required criteria and considerations for appointees and nominations to the Commission. Includes provisions regarding the terms, vacancies, and compensation for the Commission's membership. Requires that the Commission meet at least quarterly and submit an annual report due no later than December 31 of every year to the General Assembly. Provides that the Department of Public Health shall provide administrative and other support to the Commission. Effective January 1, 2017. us/states/il Illinois General Assembly 99th HB 4576 Illinois HB 4576 (99th)
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3 77 4 2016-01-28 2016-08-12 openstates ocd-bill/c9601336-2b24-4f00-95d5-e47690713f99 http://ilga.gov/legislation/BillStatus.asp?DocNum=4576&GAID=13&DocTypeID=HB&LegId=93745&SessionID=88&GA=99 0f3b4bc6104f850b1faea62844f2b60e1854d209d48c02f642d7f4e18e5a2f7d 2026-07-01 https://data.openstates.org/daily/2026-07-01/public.pgdump 2026-07-06 reported
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us-il

Illinois HB 4576 (99th) — RARE DISEASE COMMISSION

Creates the Rare Disease Commission Act. Provides for the creation of the Rare Disease Commission. Defines terms. Provides that initial appointments shall be made by February 1, 2017. Provides required criteria and considerations for appointees and nominations to the Commission. Includes provisions regarding the terms, vacancies, and compensation for the Commission's membership. Requires that the Commission meet at least quarterly and submit an annual report due no later than December 31 of every year to the General Assembly. Provides that the Department of Public Health shall provide administrative and other support to the Commission. Effective January 1, 2017.

Version chain

The bill's text revisions, in order — the diff chain from filing to enrollment.

  1. Introduced (filed) — source
  2. Engrossed (committee substitute) — source
  3. Enrolled (enrolled) — source

Votes

  • Third Reading — 54–0 (pass) · upper
  • Concurrence, Amendment 2 — 102–14 (pass) · lower
  • Third Reading — 73–40 (pass) · lower
  • Concurrence — 102–14 (pass) · lower

Sponsors

  • Andy Manar — cosponsor (person)
  • Jason A. Barickman — cosponsor (person)
  • Sonya M. Harper — primary (person)
  • Terry Link — cosponsor (person)

Timeline

The legislative action history — every referral, reading, and vote.

  • 2016-01-28 Filed with the Clerk by Rep. Sonya M. Harper filing
  • 2016-01-28 Added Chief Co-Sponsor Rep. Mary E. Flowers
  • 2016-01-28 Chief Co-Sponsor Changed to Rep. Litesa E. Wallace
  • 2016-01-28 Chief Co-Sponsor Changed to Rep. Mary E. Flowers
  • 2016-01-28 Added Chief Co-Sponsor Rep. Litesa E. Wallace
  • 2016-01-28 First Reading reading-1
  • 2016-01-28 Referred to Rules Committee referral-committee
  • 2016-02-16 Added Co-Sponsor Rep. Monique D. Davis
  • 2016-03-03 Added Co-Sponsor Rep. Michael J. Zalewski
  • 2016-03-03 Added Co-Sponsor Rep. Robert Martwick
  • 2016-03-03 Added Co-Sponsor Rep. Kathleen Willis
  • 2016-03-03 Added Chief Co-Sponsor Rep. John D. Anthony
  • 2016-03-03 Added Co-Sponsor Rep. Stephanie A. Kifowit
  • 2016-03-18 Added Co-Sponsor Rep. Al Riley
  • 2016-03-23 Assigned to Human Services Committee referral-committee
  • 2016-03-31 House Committee Amendment No. 1 Filed with Clerk by Rep. Sonya M. Harper amendment-introduction
  • 2016-03-31 House Committee Amendment No. 1 Referred to Rules Committee referral-committee
  • 2016-04-04 House Committee Amendment No. 1 Rules Refers to Human Services Committee
  • 2016-04-05 House Committee Amendment No. 1 Adopted in Human Services Committee; by Voice Vote amendment-passage
  • 2016-04-05 Do Pass as Amended / Standard Debate Human Services Committee; 008-006-000 committee-passage
  • 2016-04-05 Placed on Calendar 2nd Reading - Standard Debate
  • 2016-04-05 Added Co-Sponsor Rep. Carol Ammons
  • 2016-04-07 Second Reading - Standard Debate reading-2
  • 2016-04-07 Placed on Calendar Order of 3rd Reading - Standard Debate
  • 2016-04-12 Third Reading - Standard Debate - Passed 073-040-000 reading-3, passage
  • 2016-04-12 Added Co-Sponsor Rep. Cynthia Soto
  • 2016-04-12 Added Co-Sponsor Rep. Kenneth Dunkin
  • 2016-04-12 Added Co-Sponsor Rep. Camille Y. Lilly
  • 2016-04-13 Arrive in Senate introduction
  • 2016-04-13 Placed on Calendar Order of First Reading reading-1
  • 2016-04-13 Chief Senate Sponsor Sen. John G. Mulroe
  • 2016-04-13 Added as Alternate Chief Co-Sponsor Sen. Linda Holmes
  • 2016-04-13 Added as Alternate Chief Co-Sponsor Sen. Ira I. Silverstein
  • 2016-04-13 First Reading reading-1
  • 2016-04-13 Referred to Assignments referral-committee
  • 2016-04-20 Added as Alternate Co-Sponsor Sen. Andy Manar
  • 2016-04-21 Added as Alternate Chief Co-Sponsor Sen. Jacqueline Y. Collins
  • 2016-04-21 Added as Alternate Co-Sponsor Sen. Terry Link
  • 2016-04-27 Assigned to Public Health referral-committee
  • 2016-05-03 Postponed - Public Health
  • 2016-05-04 Senate Committee Amendment No. 1 Filed with Secretary by Sen. John G. Mulroe amendment-introduction
  • 2016-05-04 Senate Committee Amendment No. 1 Referred to Assignments referral-committee
  • 2016-05-10 Senate Committee Amendment No. 1 Assignments Refers to Public Health
  • 2016-05-10 Senate Committee Amendment No. 1 Adopted amendment-passage
  • 2016-05-11 Added as Alternate Co-Sponsor Sen. Jason A. Barickman
  • 2016-05-11 Do Pass as Amended Public Health; 008-000-000 committee-passage
  • 2016-05-11 Placed on Calendar Order of 2nd Reading May 12, 2016
  • 2016-05-12 Senate Floor Amendment No. 2 Filed with Secretary by Sen. John G. Mulroe amendment-introduction
  • 2016-05-12 Senate Floor Amendment No. 2 Referred to Assignments referral-committee
  • 2016-05-12 Added as Alternate Chief Co-Sponsor Sen. Donne E. Trotter
  • 2016-05-17 Second Reading reading-2
  • 2016-05-17 Placed on Calendar Order of 3rd Reading May 18, 2016
  • 2016-05-17 Senate Floor Amendment No. 2 Assignments Refers to Public Health
  • 2016-05-18 Senate Floor Amendment No. 2 Recommend Do Adopt Public Health; 005-000-000
  • 2016-05-26 Recalled to Second Reading reading-2
  • 2016-05-26 Senate Floor Amendment No. 2 Adopted; Mulroe amendment-passage
  • 2016-05-26 Placed on Calendar Order of 3rd Reading
  • 2016-05-26 Third Reading - Passed; 054-000-000 reading-3, passage
  • 2016-05-26 Arrived in House introduction
  • 2016-05-26 Placed on Calendar Order of Concurrence Senate Amendment(s) 1, 2
  • 2016-05-29 Senate Committee Amendment No. 1 Motion Filed Concur Rep. Sonya M. Harper
  • 2016-05-29 Senate Floor Amendment No. 2 Motion Filed Concur Rep. Sonya M. Harper
  • 2016-05-29 Senate Committee Amendment No. 1 Motion to Concur Referred to Rules Committee referral-committee
  • 2016-05-29 Senate Floor Amendment No. 2 Motion to Concur Referred to Rules Committee referral-committee
  • 2016-05-29 Senate Committee Amendment No. 1 Motion to Concur Rules Referred to Human Services Committee referral-committee
  • 2016-05-29 Senate Floor Amendment No. 2 Motion to Concur Rules Referred to Human Services Committee referral-committee
  • 2016-05-29 Senate Committee Amendment No. 1 Motion to Concur Recommends Be Adopted Human Services Committee; 008-004-000
  • 2016-05-29 Senate Floor Amendment No. 2 Motion to Concur Recommends Be Adopted Human Services Committee; 008-005-000
  • 2016-05-30 Added Co-Sponsor Rep. Marcus C. Evans, Jr.
  • 2016-05-31 Senate Committee Amendment No. 1 House Concurs 102-014-000
  • 2016-05-31 Senate Floor Amendment No. 2 House Concurs 102-014-000
  • 2016-05-31 House Concurs
  • 2016-05-31 Passed Both Houses
  • 2016-06-27 Sent to the Governor executive-receipt
  • 2016-08-12 Governor Approved executive-signature
  • 2016-08-12 Effective Date January 1, 2017
  • 2016-08-12 Public Act . . . . . . . . . 99-0773 became-law

Source

OpenStates / OpenCivicData bulk snapshot 2026-07-01; origin ocd-bill/c9601336-2b24-4f00-95d5-e47690713f99. Confidence: reported (aggregated from official Illinois legislature records).

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