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republic-os/legislation/us/states/il/99th/hb-4576.md
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Fabio 5941153bb7 Legislation: batch B — IL IN KS KY LA MA MD ME MI MN 
Co-Authored-By: Claude Opus 4.8 <noreply@anthropic.com>
2026-07-06 17:27:20 -04:00

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---
type: "Bill"
title: "RARE DISEASE COMMISSION"
description: "Creates the Rare Disease Commission Act. Provides for the creation of the Rare Disease Commission. Defines terms. Provides that initial appointments shall be made by February 1, 2017. Provides required criteria and considerations for appointees and nominations to the Commission. Includes provisions regarding the terms, vacancies, and compensation for the Commission's membership. Requires that the Commission meet at least quarterly and submit an annual report due no later than December 31 of every year to the General Assembly. Provides that the Department of Public Health shall provide administrative and other support to the Commission. Effective January 1, 2017."
jurisdiction: "us/states/il"
legislature: "Illinois General Assembly"
session: "99th"
identifier: "HB 4576"
citation: "Illinois HB 4576 (99th)"
classification: ["bill"]
subjects: []
status: "enacted"
primary_sponsors: []
version_count: 3
action_count: 77
vote_count: 4
first_action: "2016-01-28"
last_action: "2016-08-12"
source: "openstates"
source_identifier: "ocd-bill/c9601336-2b24-4f00-95d5-e47690713f99"
source_url: "http://ilga.gov/legislation/BillStatus.asp?DocNum=4576&GAID=13&DocTypeID=HB&LegId=93745&SessionID=88&GA=99"
source_hash: "0f3b4bc6104f850b1faea62844f2b60e1854d209d48c02f642d7f4e18e5a2f7d"
vintage: "2026-07-01"
source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
retrieved_at: "2026-07-06"
confidence: "reported"
tags: ["legislation", "bill", "us-il"]
---
# Illinois HB 4576 (99th) — RARE DISEASE COMMISSION
Creates the Rare Disease Commission Act. Provides for the creation of the Rare Disease Commission. Defines terms. Provides that initial appointments shall be made by February 1, 2017. Provides required criteria and considerations for appointees and nominations to the Commission. Includes provisions regarding the terms, vacancies, and compensation for the Commission's membership. Requires that the Commission meet at least quarterly and submit an annual report due no later than December 31 of every year to the General Assembly. Provides that the Department of Public Health shall provide administrative and other support to the Commission. Effective January 1, 2017.
## Version chain
The bill's text revisions, in order — the diff chain from filing to enrollment.
1. **Introduced** (filed) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=09900HB4576&GA=99&SessionId=88&DocTypeId=HB&LegID=93745&DocNum=4576&GAID=13&Session=&print=true)
2. **Engrossed** (committee substitute) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=09900HB4576eng&GA=99&SessionId=88&DocTypeId=HB&LegID=93745&DocNum=4576&GAID=13&Session=&print=true)
3. **Enrolled** (enrolled) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=09900HB4576enr&GA=99&SessionId=88&DocTypeId=HB&LegID=93745&DocNum=4576&GAID=13&Session=&print=true)
## Votes
- Third Reading — **54–0** (pass) · upper
- Concurrence, Amendment 2 — **102–14** (pass) · lower
- Third Reading — **73–40** (pass) · lower
- Concurrence — **102–14** (pass) · lower
## Sponsors
- Andy Manar — cosponsor (person)
- Jason A. Barickman — cosponsor (person)
- Sonya M. Harper — primary (person)
- Terry Link — cosponsor (person)
## Timeline
The legislative action history — every referral, reading, and vote.
- **2016-01-28** Filed with the Clerk by Rep. Sonya M. Harper `filing`
- **2016-01-28** Added Chief Co-Sponsor Rep. Mary E. Flowers
- **2016-01-28** Chief Co-Sponsor Changed to Rep. Litesa E. Wallace
- **2016-01-28** Chief Co-Sponsor Changed to Rep. Mary E. Flowers
- **2016-01-28** Added Chief Co-Sponsor Rep. Litesa E. Wallace
- **2016-01-28** First Reading `reading-1`
- **2016-01-28** Referred to Rules Committee `referral-committee`
- **2016-02-16** Added Co-Sponsor Rep. Monique D. Davis
- **2016-03-03** Added Co-Sponsor Rep. Michael J. Zalewski
- **2016-03-03** Added Co-Sponsor Rep. Robert Martwick
- **2016-03-03** Added Co-Sponsor Rep. Kathleen Willis
- **2016-03-03** Added Chief Co-Sponsor Rep. John D. Anthony
- **2016-03-03** Added Co-Sponsor Rep. Stephanie A. Kifowit
- **2016-03-18** Added Co-Sponsor Rep. Al Riley
- **2016-03-23** Assigned to Human Services Committee `referral-committee`
- **2016-03-31** House Committee Amendment No. 1 Filed with Clerk by Rep. Sonya M. Harper `amendment-introduction`
- **2016-03-31** House Committee Amendment No. 1 Referred to Rules Committee `referral-committee`
- **2016-04-04** House Committee Amendment No. 1 Rules Refers to Human Services Committee
- **2016-04-05** House Committee Amendment No. 1 Adopted in Human Services Committee; by Voice Vote `amendment-passage`
- **2016-04-05** Do Pass as Amended / Standard Debate Human Services Committee; 008-006-000 `committee-passage`
- **2016-04-05** Placed on Calendar 2nd Reading - Standard Debate
- **2016-04-05** Added Co-Sponsor Rep. Carol Ammons
- **2016-04-07** Second Reading - Standard Debate `reading-2`
- **2016-04-07** Placed on Calendar Order of 3rd Reading - Standard Debate
- **2016-04-12** Third Reading - Standard Debate - Passed 073-040-000 `reading-3, passage`
- **2016-04-12** Added Co-Sponsor Rep. Cynthia Soto
- **2016-04-12** Added Co-Sponsor Rep. Kenneth Dunkin
- **2016-04-12** Added Co-Sponsor Rep. Camille Y. Lilly
- **2016-04-13** Arrive in Senate `introduction`
- **2016-04-13** Placed on Calendar Order of First Reading `reading-1`
- **2016-04-13** Chief Senate Sponsor Sen. John G. Mulroe
- **2016-04-13** Added as Alternate Chief Co-Sponsor Sen. Linda Holmes
- **2016-04-13** Added as Alternate Chief Co-Sponsor Sen. Ira I. Silverstein
- **2016-04-13** First Reading `reading-1`
- **2016-04-13** Referred to Assignments `referral-committee`
- **2016-04-20** Added as Alternate Co-Sponsor Sen. Andy Manar
- **2016-04-21** Added as Alternate Chief Co-Sponsor Sen. Jacqueline Y. Collins
- **2016-04-21** Added as Alternate Co-Sponsor Sen. Terry Link
- **2016-04-27** Assigned to Public Health `referral-committee`
- **2016-05-03** Postponed - Public Health
- **2016-05-04** Senate Committee Amendment No. 1 Filed with Secretary by Sen. John G. Mulroe `amendment-introduction`
- **2016-05-04** Senate Committee Amendment No. 1 Referred to Assignments `referral-committee`
- **2016-05-10** Senate Committee Amendment No. 1 Assignments Refers to Public Health
- **2016-05-10** Senate Committee Amendment No. 1 Adopted `amendment-passage`
- **2016-05-11** Added as Alternate Co-Sponsor Sen. Jason A. Barickman
- **2016-05-11** Do Pass as Amended Public Health; 008-000-000 `committee-passage`
- **2016-05-11** Placed on Calendar Order of 2nd Reading May 12, 2016
- **2016-05-12** Senate Floor Amendment No. 2 Filed with Secretary by Sen. John G. Mulroe `amendment-introduction`
- **2016-05-12** Senate Floor Amendment No. 2 Referred to Assignments `referral-committee`
- **2016-05-12** Added as Alternate Chief Co-Sponsor Sen. Donne E. Trotter
- **2016-05-17** Second Reading `reading-2`
- **2016-05-17** Placed on Calendar Order of 3rd Reading May 18, 2016
- **2016-05-17** Senate Floor Amendment No. 2 Assignments Refers to Public Health
- **2016-05-18** Senate Floor Amendment No. 2 Recommend Do Adopt Public Health; 005-000-000
- **2016-05-26** Recalled to Second Reading `reading-2`
- **2016-05-26** Senate Floor Amendment No. 2 Adopted; Mulroe `amendment-passage`
- **2016-05-26** Placed on Calendar Order of 3rd Reading
- **2016-05-26** Third Reading - Passed; 054-000-000 `reading-3, passage`
- **2016-05-26** Arrived in House `introduction`
- **2016-05-26** Placed on Calendar Order of Concurrence Senate Amendment(s) 1, 2
- **2016-05-29** Senate Committee Amendment No. 1 Motion Filed Concur Rep. Sonya M. Harper
- **2016-05-29** Senate Floor Amendment No. 2 Motion Filed Concur Rep. Sonya M. Harper
- **2016-05-29** Senate Committee Amendment No. 1 Motion to Concur Referred to Rules Committee `referral-committee`
- **2016-05-29** Senate Floor Amendment No. 2 Motion to Concur Referred to Rules Committee `referral-committee`
- **2016-05-29** Senate Committee Amendment No. 1 Motion to Concur Rules Referred to Human Services Committee `referral-committee`
- **2016-05-29** Senate Floor Amendment No. 2 Motion to Concur Rules Referred to Human Services Committee `referral-committee`
- **2016-05-29** Senate Committee Amendment No. 1 Motion to Concur Recommends Be Adopted Human Services Committee; 008-004-000
- **2016-05-29** Senate Floor Amendment No. 2 Motion to Concur Recommends Be Adopted Human Services Committee; 008-005-000
- **2016-05-30** Added Co-Sponsor Rep. Marcus C. Evans, Jr.
- **2016-05-31** Senate Committee Amendment No. 1 House Concurs 102-014-000
- **2016-05-31** Senate Floor Amendment No. 2 House Concurs 102-014-000
- **2016-05-31** House Concurs
- **2016-05-31** Passed Both Houses
- **2016-06-27** Sent to the Governor `executive-receipt`
- **2016-08-12** Governor Approved `executive-signature`
- **2016-08-12** Effective Date January 1, 2017
- **2016-08-12** Public Act . . . . . . . . . 99-0773 `became-law`
## Source
OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/c9601336-2b24-4f00-95d5-e47690713f99`. Confidence: reported (aggregated from official Illinois legislature records).
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