Fabio
128 lines
8.5 KiB
Markdown
128 lines
8.5 KiB
Markdown
---
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type: "Bill"
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title: "Sickle cell disease; statewide registry created, collection of disease case information, report."
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description: "Sickle cell disease; statewide registry; collectionof sickle cell disease case information; penalties; notification;annual report. Creates a statewide registry of sickle cell diseasepatients to be maintained by the State Health Commissioner. The billestablishes: (i) standards and selection criteria for the collectionof sickle cell disease information; (ii) penalties for unauthorizeduse of data from such registry; and (iii) notice requirements forpatients whose personal identifying information has been submittedto such registry. The bill allows patients diagnosed with sicklecell disease to self-report information to the sickle cell diseaseregistry. Under the bill, a patient has the right to opt out of havinghis information reported to the statewide sickle cell disease registry.The bill also directs the Commissioner to submit an annual reportof the information obtained from the sickle cell disease registryto the Governor and the General Assembly by November 1 of each year."
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jurisdiction: "us/states/va"
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legislature: "Virginia General Assembly"
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session: "2024"
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identifier: "HB 252"
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citation: "Virginia HB 252 (2024)"
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classification: ["bill"]
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subjects: []
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status: "enacted"
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primary_sponsors: ["Joshua G. Cole"]
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version_count: 3
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action_count: 54
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vote_count: 14
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first_action: "2024-01-04"
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last_action: "2024-04-04"
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source: "openstates"
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source_identifier: "ocd-bill/33ec31c6-a2f5-4f35-9889-35eb23f35de8"
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source_url: "https://lis.virginia.gov/cgi-bin/legp604.exe?241+sum+HB252"
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source_hash: "a0af6854e173bdc812130b2ea4b066a39d508272fcd2b30b761aaf04bd3be3dc"
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vintage: "2026-07-01"
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source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
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retrieved_at: "2026-07-06"
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confidence: "reported"
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tags: ["legislation", "bill", "us-va"]
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---
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# Virginia HB 252 (2024) — Sickle cell disease; statewide registry created, collection of disease case information, report.
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Sickle cell disease; statewide registry; collectionof sickle cell disease case information; penalties; notification;annual report. Creates a statewide registry of sickle cell diseasepatients to be maintained by the State Health Commissioner. The billestablishes: (i) standards and selection criteria for the collectionof sickle cell disease information; (ii) penalties for unauthorizeduse of data from such registry; and (iii) notice requirements forpatients whose personal identifying information has been submittedto such registry. The bill allows patients diagnosed with sicklecell disease to self-report information to the sickle cell diseaseregistry. Under the bill, a patient has the right to opt out of havinghis information reported to the statewide sickle cell disease registry.The bill also directs the Commissioner to submit an annual reportof the information obtained from the sickle cell disease registryto the Governor and the General Assembly by November 1 of each year.
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## Version chain
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The bill's text revisions, in order — the diff chain from filing to enrollment.
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1. **CHAP0437** (committee substitute) — [source](https://lis.virginia.gov/cgi-bin/legp604.exe?241+ful+CHAP0437)
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2. **HB252ER** (committee substitute) — [source](https://lis.virginia.gov/cgi-bin/legp604.exe?241+ful+HB252ER)
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3. **Prefiled and ordered printed; offered 01/10/24 24104509D** (committee substitute) — [source](https://lis.virginia.gov/cgi-bin/legp604.exe?241+ful+HB252)
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## Votes
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- Reported from Finance and Appropriations with amendment (14-Y 0-N) — **14–0** (pass) · upper
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- VOTE: Adoption (97-Y 0-N) — **96–0** (pass) · lower
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- Reported from Education and Health with amendment (15-Y 0-N) — **15–0** (pass) · upper
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- VOTE: Passage (96-Y 0-N) — **95–0** (pass) · lower
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- Conference report agreed to by Senate (40-Y 0-N) — **40–0** (pass) · upper
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- Senate insisted on amendment (40-Y 0-N) — **40–0** (pass) · upper
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- VOTE: Adoption (95-Y 0-N) — **94–0** (pass) · lower
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- Subcommittee recommends reporting (8-Y 0-N) — **8–0** (pass) · lower
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- VOTE: REJECTED (0-Y 98-N) — **0–97** (fail) · lower
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- Passed Senate with amendments (40-Y 0-N) — **40–0** (pass) · upper
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- Constitutional reading dispensed (40-Y 0-N) — **40–0** (pass) · upper
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- Subcommittee recommends reporting (8-Y 0-N) — **8–0** (pass) · lower
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- Reported from Appropriations (21-Y 0-N) — **21–0** (pass) · lower
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- Reported from Health and Human Services (22-Y 0-N) — **22–0** (pass) · lower
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## Sponsors
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- Joshua G. Cole — primary (person)
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- Candi Mundon King — cosponsor (person)
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- Dan I. Helmer — cosponsor (person)
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## Timeline
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The legislative action history — every referral, reading, and vote.
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- **2024-01-04** Prefiled and ordered printed; offered 01/10/24 24104509D `filing, introduction`
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- **2024-01-04** Referred to Committee on Health and Human Services `referral-committee`
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- **2024-01-17** Assigned sub: Health `referral-committee`
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- **2024-01-22** Impact statement from DPB (HB252)
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- **2024-01-23** Subcommittee recommends reporting (8-Y 0-N)
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- **2024-01-23** Subcommittee recommends referring to Committee on Appropriations `referral-committee`
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- **2024-01-25** Reported from Health and Human Services (22-Y 0-N) `committee-passage`
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- **2024-01-25** Referred to Committee on Appropriations `referral-committee`
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- **2024-01-25** Assigned App. sub: Health & Human Resources `referral-committee`
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- **2024-02-02** Subcommittee recommends reporting (8-Y 0-N)
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- **2024-02-05** Reported from Appropriations (21-Y 0-N) `committee-passage`
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- **2024-02-07** Read first time `reading-1`
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- **2024-02-08** Read second time and engrossed `reading-2`
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- **2024-02-09** Read third time and passed House (96-Y 0-N) `passage, reading-3`
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- **2024-02-09** VOTE: Passage (96-Y 0-N) `passage`
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- **2024-02-12** Constitutional reading dispensed
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- **2024-02-12** Referred to Committee on Education and Health `referral-committee`
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- **2024-02-19** Assigned Education and Health Sub: Health `referral-committee`
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- **2024-02-22** Reported from Education and Health with amendment (15-Y 0-N) `committee-passage`
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- **2024-02-22** Rereferred to Finance and Appropriations `referral-committee`
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- **2024-02-29** Reported from Finance and Appropriations with amendment (14-Y 0-N) `committee-passage`
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- **2024-03-04** Constitutional reading dispensed (40-Y 0-N)
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- **2024-03-05** Read third time `reading-3`
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- **2024-03-05** Reading of amendment waived
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- **2024-03-05** Education and Health Committee amendment agreed to `amendment-passage`
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- **2024-03-05** Reading of amendment waived
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- **2024-03-05** Finance and Appropriations Committee amendment agreed to `amendment-passage`
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- **2024-03-05** Engrossed by Senate as amended
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- **2024-03-05** Passed Senate with amendments (40-Y 0-N) `passage`
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- **2024-03-06** Passed by temporarily
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- **2024-03-06** Senate amendment #1 agreed to by House (97-Y 0-N) `amendment-passage`
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- **2024-03-06** VOTE: Adoption (97-Y 0-N)
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- **2024-03-06** Senate amendment #2 rejected by House (0-Y 98-N0 `amendment-failure`
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- **2024-03-06** VOTE: REJECTED (0-Y 98-N)
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- **2024-03-07** Senate insisted on amendment (40-Y 0-N)
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- **2024-03-07** Senate requested conference committee `referral-committee`
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- **2024-03-07** House acceded to request
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- **2024-03-07** Conferees appointed by Senate
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- **2024-03-07** Senators: Favola, Bagby, Head
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- **2024-03-07** Conferees appointed by House
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- **2024-03-07** Delegates: Cole, Mundon King, Hodges
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- **2024-03-08** Amended by conference committee
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- **2024-03-08** Conference report agreed to by Senate (40-Y 0-N) `committee-passage-favorable`
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- **2024-03-08** Conference report agreed to by House (95-Y 0-N) `committee-passage-favorable`
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- **2024-03-08** VOTE: Adoption (95-Y 0-N)
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- **2024-03-25** Enrolled `enrolled`
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- **2024-03-25** Bill text as passed House and Senate (HB252ER) `passage`
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- **2024-03-25** Signed by President `passage`
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- **2024-03-26** Signed by Speaker `passage`
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- **2024-03-27** Impact statement from DPB (HB252ER)
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- **2024-03-27** Enrolled Bill communicated to Governor on March 27, 2024 `enrolled, executive-receipt`
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- **2024-03-27** Governor's Action Deadline 11:59 p.m., April 8, 2024 `executive-receipt`
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- **2024-04-04** Approved by Governor-Chapter 437 (effective 7/1/24) `executive-signature`
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- **2024-04-04** Acts of Assembly Chapter text (CHAP0437)
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## Source
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OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/33ec31c6-a2f5-4f35-9889-35eb23f35de8`. Confidence: reported (aggregated from official Virginia legislature records).
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