Fabio
149 lines
10 KiB
Markdown
149 lines
10 KiB
Markdown
---
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type: "Bill"
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title: "NEWBORN ADRENOLEUKODYSTROPHY"
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description: "Amends the Newborn Metabolic Screening Act. Requires the Department of Public Health to provide all newborns with screening tests for the presence of adrenoleukodystrophy (ALD). Provides that testing shall begin within 12 months following the occurrence of various events, including: (1) the development and validation of a reliable methodology; (2) the availability of any necessary reagents; (3) the establishment and verification of relevant and appropriate performance specifications; (4) the availability of quality assurance testing; (5) the acquisition and installment of necessary equipment; (6) the establishment of precise threshold values ensuring defined disorder identification for ALD; (7) the authentication of pilot testing; and (8) the authentication of achieving the potential of high throughput standards. Allows the Department to implement an additional fee for the screening prior to beginning the testing in order to accumulate the resources for start-up and other costs associated with implementation of the screening and thereafter to support the costs associated with screening and follow-up programs for adrenoleukodystrophy."
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jurisdiction: "us/states/il"
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legislature: "Illinois General Assembly"
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session: "99th"
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identifier: "HB 2790"
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citation: "Illinois HB 2790 (99th)"
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classification: ["bill"]
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subjects: []
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status: "enacted"
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primary_sponsors: []
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version_count: 3
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action_count: 86
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vote_count: 3
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first_action: "2015-02-20"
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last_action: "2015-08-19"
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source: "openstates"
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source_identifier: "ocd-bill/a0bde31e-97c4-41a3-bc88-4f3fd70081c6"
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source_url: "http://ilga.gov/legislation/BillStatus.asp?DocNum=2790&GAID=13&DocTypeID=HB&LegId=88753&SessionID=88&GA=99"
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source_hash: "50f4ea995053ccf9f14f3205ca6e341befe3eaeb98d8c474185bb37a708522e1"
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vintage: "2026-07-01"
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source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
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retrieved_at: "2026-07-06"
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confidence: "reported"
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tags: ["legislation", "bill", "us-il"]
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---
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# Illinois HB 2790 (99th) — NEWBORN ADRENOLEUKODYSTROPHY
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Amends the Newborn Metabolic Screening Act. Requires the Department of Public Health to provide all newborns with screening tests for the presence of adrenoleukodystrophy (ALD). Provides that testing shall begin within 12 months following the occurrence of various events, including: (1) the development and validation of a reliable methodology; (2) the availability of any necessary reagents; (3) the establishment and verification of relevant and appropriate performance specifications; (4) the availability of quality assurance testing; (5) the acquisition and installment of necessary equipment; (6) the establishment of precise threshold values ensuring defined disorder identification for ALD; (7) the authentication of pilot testing; and (8) the authentication of achieving the potential of high throughput standards. Allows the Department to implement an additional fee for the screening prior to beginning the testing in order to accumulate the resources for start-up and other costs associated with implementation of the screening and thereafter to support the costs associated with screening and follow-up programs for adrenoleukodystrophy.
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## Version chain
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The bill's text revisions, in order — the diff chain from filing to enrollment.
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1. **Introduced** (filed) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=09900HB2790&GA=99&SessionId=88&DocTypeId=HB&LegID=88753&DocNum=2790&GAID=13&Session=&print=true)
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2. **Engrossed** (committee substitute) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=09900HB2790eng&GA=99&SessionId=88&DocTypeId=HB&LegID=88753&DocNum=2790&GAID=13&Session=&print=true)
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3. **Enrolled** (enrolled) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=09900HB2790enr&GA=99&SessionId=88&DocTypeId=HB&LegID=88753&DocNum=2790&GAID=13&Session=&print=true)
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## Votes
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- Concurrence — **111–0** (pass) · lower
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- Third Reading — **51–0** (pass) · upper
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- Third Reading — **114–1** (pass) · lower
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## Sponsors
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- Daniel Biss — cosponsor (person)
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- John G. Mulroe — cosponsor (person)
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- Laura Fine — primary (person)
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## Timeline
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The legislative action history — every referral, reading, and vote.
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- **2015-02-20** Filed with the Clerk by Rep. Laura Fine `filing`
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- **2015-02-20** First Reading `reading-1`
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- **2015-02-20** Referred to Rules Committee `referral-committee`
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- **2015-03-02** Assigned to Human Services Committee `referral-committee`
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- **2015-03-17** Added Co-Sponsor Rep. Martin J. Moylan
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- **2015-03-17** Added Co-Sponsor Rep. Robyn Gabel
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- **2015-03-17** Added Co-Sponsor Rep. Deb Conroy
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- **2015-03-17** Added Co-Sponsor Rep. Stephanie A. Kifowit
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- **2015-03-17** Added Co-Sponsor Rep. Emily McAsey
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- **2015-03-17** Added Co-Sponsor Rep. Scott Drury
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- **2015-03-17** Added Co-Sponsor Rep. Michelle Mussman
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- **2015-03-17** Added Co-Sponsor Rep. Litesa E. Wallace
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- **2015-03-18** Added Co-Sponsor Rep. Anna Moeller
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- **2015-03-18** Added Co-Sponsor Rep. Sara Feigenholtz
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- **2015-03-18** Added Co-Sponsor Rep. Elizabeth Hernandez
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- **2015-03-18** Added Co-Sponsor Rep. Camille Y. Lilly
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- **2015-03-18** Added Co-Sponsor Rep. Carol Ammons
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- **2015-03-18** Added Co-Sponsor Rep. Carol Sente
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- **2015-03-18** Added Co-Sponsor Rep. Elaine Nekritz
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- **2015-03-18** Added Co-Sponsor Rep. Robert Martwick
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- **2015-03-18** Added Co-Sponsor Rep. Kelly M. Cassidy
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- **2015-03-18** Added Co-Sponsor Rep. Jaime M. Andrade, Jr.
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- **2015-03-19** Added Co-Sponsor Rep. Will Guzzardi
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- **2015-03-19** Added Co-Sponsor Rep. Pamela Reaves-Harris
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- **2015-03-19** Added Co-Sponsor Rep. André Thapedi
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- **2015-03-19** Added Co-Sponsor Rep. Margo McDermed
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- **2015-03-19** Added Co-Sponsor Rep. Ed Sullivan
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- **2015-03-19** Added Co-Sponsor Rep. Barbara Wheeler
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- **2015-03-19** Added Co-Sponsor Rep. Michael P. McAuliffe
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- **2015-03-19** Added Co-Sponsor Rep. Raymond Poe
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- **2015-03-19** Added Co-Sponsor Rep. Mary E. Flowers
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- **2015-03-19** Added Co-Sponsor Rep. Kathleen Willis
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- **2015-03-19** Added Co-Sponsor Rep. Christian L. Mitchell
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- **2015-03-19** Added Co-Sponsor Rep. Kelly M. Burke
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- **2015-03-19** Added Co-Sponsor Rep. Dan Brady
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- **2015-03-19** Added Co-Sponsor Rep. Barbara Flynn Currie
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- **2015-03-19** Added Co-Sponsor Rep. Esther Golar
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- **2015-03-19** Added Co-Sponsor Rep. Eddie Lee Jackson, Sr.
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- **2015-03-23** House Committee Amendment No. 1 Filed with Clerk by Rep. Laura Fine `amendment-introduction`
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- **2015-03-23** House Committee Amendment No. 1 Referred to Rules Committee `referral-committee`
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- **2015-03-24** House Committee Amendment No. 1 Rules Refers to Human Services Committee
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- **2015-03-25** House Committee Amendment No. 1 Adopted in Human Services Committee; by Voice Vote `amendment-passage`
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- **2015-03-25** Do Pass as Amended / Short Debate Human Services Committee; 012-000-000 `committee-passage`
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- **2015-03-25** Placed on Calendar 2nd Reading - Short Debate
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- **2015-03-25** Added Co-Sponsor Rep. Cynthia Soto
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- **2015-04-13** Added Co-Sponsor Rep. Al Riley
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- **2015-04-14** Second Reading - Short Debate `reading-2`
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- **2015-04-14** Placed on Calendar Order of 3rd Reading - Short Debate
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- **2015-04-15** Third Reading - Short Debate - Passed 114-001-000 `reading-3, passage`
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- **2015-04-15** Arrive in Senate `introduction`
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- **2015-04-15** Placed on Calendar Order of First Reading April 16, 2015 `reading-1`
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- **2015-04-15** Chief Senate Sponsor Sen. Dale A. Righter
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- **2015-04-16** First Reading `reading-1`
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- **2015-04-16** Referred to Assignments `referral-committee`
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- **2015-04-22** Assigned to Public Health `referral-committee`
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- **2015-04-29** Added as Alternate Co-Sponsor Sen. Heather A. Steans
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- **2015-04-29** Sponsor Removed Sen. Heather A. Steans
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- **2015-04-29** Added as Alternate Chief Co-Sponsor Sen. Heather A. Steans
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- **2015-04-29** Added as Alternate Chief Co-Sponsor Sen. Julie A. Morrison
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- **2015-04-29** Added as Alternate Chief Co-Sponsor Sen. Iris Y. Martinez
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- **2015-04-30** Senate Committee Amendment No. 1 Filed with Secretary by Sen. Dale A. Righter `amendment-introduction`
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- **2015-04-30** Senate Committee Amendment No. 1 Referred to Assignments `referral-committee`
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- **2015-05-05** Senate Committee Amendment No. 1 Assignments Refers to Public Health
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- **2015-05-06** Postponed - Public Health
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- **2015-05-06** Senate Committee Amendment No. 1 Postponed - Public Health
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- **2015-05-07** Added as Alternate Co-Sponsor Sen. John G. Mulroe
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- **2015-05-12** Senate Committee Amendment No. 1 Adopted `amendment-passage`
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- **2015-05-13** Do Pass as Amended Public Health; 007-000-000 `committee-passage`
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- **2015-05-13** Placed on Calendar Order of 2nd Reading May 14, 2015
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- **2015-05-14** Added as Alternate Co-Sponsor Sen. Daniel Biss
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- **2015-05-20** Second Reading `reading-2`
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- **2015-05-20** Placed on Calendar Order of 3rd Reading May 21, 2015
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- **2015-05-22** Third Reading - Passed; 051-000-001 `reading-3, passage`
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- **2015-05-22** Arrived in House `introduction`
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- **2015-05-22** Placed on Calendar Order of Concurrence Senate Amendment(s) 1
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- **2015-05-25** Senate Committee Amendment No. 1 Motion Filed Concur Rep. Laura Fine
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- **2015-05-25** Senate Committee Amendment No. 1 Motion to Concur Referred to Rules Committee `referral-committee`
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- **2015-05-26** Senate Committee Amendment No. 1 Motion to Concur Rules Referred to Human Services Committee `referral-committee`
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- **2015-05-27** Senate Committee Amendment No. 1 Motion to Concur Recommends Be Adopted Human Services Committee; 013-000-000
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- **2015-05-31** Senate Committee Amendment No. 1 House Concurs 111-000-000
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- **2015-05-31** House Concurs
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- **2015-05-31** Passed Both Houses
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- **2015-06-29** Sent to the Governor `executive-receipt`
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- **2015-08-19** Governor Approved `executive-signature`
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- **2015-08-19** Effective Date August 19, 2015
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- **2015-08-19** Public Act . . . . . . . . . 99-0403 `became-law`
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## Source
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OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/a0bde31e-97c4-41a3-bc88-4f3fd70081c6`. Confidence: reported (aggregated from official Illinois legislature records).
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