Fabio
80 lines
4.2 KiB
Markdown
80 lines
4.2 KiB
Markdown
---
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type: "Bill"
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title: "Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry"
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description: "Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto."
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jurisdiction: "us/states/ny"
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legislature: "New York Legislature"
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session: "2025-2026"
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identifier: "A 7845"
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citation: "New York A 7845 (2025-2026)"
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classification: ["bill"]
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subjects: []
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status: "enacted"
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primary_sponsors: ["Steve Stern"]
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version_count: 1
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action_count: 16
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vote_count: 2
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first_action: "2025-04-11"
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last_action: "2025-10-17"
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source: "openstates"
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source_identifier: "ocd-bill/7272a907-a14d-457b-88c7-5cc187a73b63"
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source_url: "http://www.nysenate.gov/legislation/bills/2025/A7845"
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source_hash: "d2acce4d3c4b908a3ddc6ebb5011003ef8aeb08b53953508a04023e40d13ff86"
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vintage: "2026-07-01"
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source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
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retrieved_at: "2026-07-06"
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confidence: "reported"
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tags: ["legislation", "bill", "us-ny"]
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---
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# New York A 7845 (2025-2026) — Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry
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Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.
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## Version chain
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The bill's text revisions, in order — the diff chain from filing to enrollment.
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1. **A7845** (committee substitute) — [source](http://assembly.state.ny.us/leg/?sh=printbill&bn=A7845&term=2025&Text=Y)
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## Votes
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- Floor Vote — **58–0** (pass) · upper
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- Assembly Vote — **139–0** (pass) · lower
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## Sponsors
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- Steve Stern — primary (person)
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- Harvey Epstein — cosponsor (person)
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- MaryJane Shimsky — cosponsor (person)
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- Micah Lasher — cosponsor (person)
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- Nader Sayegh — cosponsor (person)
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- Rebecca Seawright — cosponsor (person)
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- Steven Otis — cosponsor (person)
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## Timeline
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The legislative action history — every referral, reading, and vote.
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- **2025-04-11** REFERRED TO HEALTH `referral-committee`
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- **2025-05-19** REPORTED REFERRED TO CODES `referral-committee`
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- **2025-05-28** REPORTED REFERRED TO WAYS AND MEANS `referral-committee`
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- **2025-05-29** REPORTED REFERRED TO RULES `referral-committee`
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- **2025-06-06** REPORTED
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- **2025-06-06** RULES REPORT CAL.455
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- **2025-06-06** ORDERED TO THIRD READING RULES CAL.455
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- **2025-06-06** PASSED ASSEMBLY `passage`
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- **2025-06-06** DELIVERED TO SENATE
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- **2025-06-06** REFERRED TO RULES `referral-committee`
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- **2025-06-10** SUBSTITUTED FOR S6413
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- **2025-06-10** 3RD READING CAL.1540
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- **2025-06-10** PASSED SENATE `passage`
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- **2025-06-10** RETURNED TO ASSEMBLY
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- **2025-10-09** DELIVERED TO GOVERNOR `executive-receipt`
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- **2025-10-17** SIGNED CHAP.478 `executive-signature`
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## Source
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OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/7272a907-a14d-457b-88c7-5cc187a73b63`. Confidence: reported (aggregated from official New York legislature records).
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