Fabio
93 lines
5.8 KiB
Markdown
93 lines
5.8 KiB
Markdown
---
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type: "Bill"
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title: "Rena Grant Sickle Cell Disease Voluntary Patient Registry Act"
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description: "AN ACT TO AMEND CHAPTER 33, TITLE 44, CODE OF LAWS OF SOUTH CAROLINA, 1976, RELATING TO SICKLE CELL DISEASE, SO AS TO ENACT THE \"RENA GRANT SICKLE CELL DISEASE VOLUNTARY PATIENT REGISTRY ACT\"; TO REQUIRE THE SOUTH CAROLINA DEPARTMENT OF HEALTH AND ENVIRONMENTAL CONTROL TO DEVELOP AND MAINTAIN A SICKLE CELL DISEASE VOLUNTARY PATIENT REGISTRY IN WHICH PATIENTS DIAGNOSED WITH SICKLE CELL DISEASE MAY REGISTER; TO ESTABLISH REQUIREMENTS FOR A PHYSICIAN TO SUBMIT THE NAME AND OTHER IDENTIFYING INFORMATION OF A PATIENT DIAGNOSED WITH SICKLE CELL DISEASE TO THE REGISTRY; TO PROHIBIT RELEASE OF INFORMATION CONTAINED IN THE REGISTRY, WITH EXCEPTIONS; TO ALLOW ACCESS TO INFORMATION IN THE REGISTRY BY, AMONG OTHERS, TREATING PHYSICIANS AND OTHER HEALTH CARE PRACTITIONERS TO VERIFY PATIENT REGISTRATION AND HEALTH CARE RESEARCHERS; TO ALLOW A PATIENT TO REVOKE A REGISTRATION; AND FOR OTHER PURPOSES. - ratified title"
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jurisdiction: "us/states/sc"
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legislature: "South Carolina General Assembly"
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session: "2021-2022"
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identifier: "H 3166"
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citation: "South Carolina H 3166 (2021-2022)"
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classification: ["bill"]
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subjects: []
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status: "enacted"
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primary_sponsors: ["Anderson", "Brawley", "Cobb-Hunter", "G.M. Smith", "Govan", "King", "Robinson", "Thigpen"]
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version_count: 5
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action_count: 23
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vote_count: 3
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first_action: "2020-12-09"
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last_action: "2022-06-01"
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source: "openstates"
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source_identifier: "ocd-bill/7d1087bb-c08a-4b2c-b4e1-463cb9fad444"
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source_url: "https://www.scstatehouse.gov/billsearch.php?billnumbers=3166&session=124&summary=B"
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source_hash: "5f1b4372fbfe5370b9a5791b316f8f44eec5dbd0cc6618f7dc8bee3632c07aff"
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vintage: "2026-07-01"
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source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
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retrieved_at: "2026-07-06"
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confidence: "reported"
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tags: ["legislation", "bill", "us-sc"]
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---
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# South Carolina H 3166 (2021-2022) — Rena Grant Sickle Cell Disease Voluntary Patient Registry Act
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AN ACT TO AMEND CHAPTER 33, TITLE 44, CODE OF LAWS OF SOUTH CAROLINA, 1976, RELATING TO SICKLE CELL DISEASE, SO AS TO ENACT THE "RENA GRANT SICKLE CELL DISEASE VOLUNTARY PATIENT REGISTRY ACT"; TO REQUIRE THE SOUTH CAROLINA DEPARTMENT OF HEALTH AND ENVIRONMENTAL CONTROL TO DEVELOP AND MAINTAIN A SICKLE CELL DISEASE VOLUNTARY PATIENT REGISTRY IN WHICH PATIENTS DIAGNOSED WITH SICKLE CELL DISEASE MAY REGISTER; TO ESTABLISH REQUIREMENTS FOR A PHYSICIAN TO SUBMIT THE NAME AND OTHER IDENTIFYING INFORMATION OF A PATIENT DIAGNOSED WITH SICKLE CELL DISEASE TO THE REGISTRY; TO PROHIBIT RELEASE OF INFORMATION CONTAINED IN THE REGISTRY, WITH EXCEPTIONS; TO ALLOW ACCESS TO INFORMATION IN THE REGISTRY BY, AMONG OTHERS, TREATING PHYSICIANS AND OTHER HEALTH CARE PRACTITIONERS TO VERIFY PATIENT REGISTRATION AND HEALTH CARE RESEARCHERS; TO ALLOW A PATIENT TO REVOKE A REGISTRATION; AND FOR OTHER PURPOSES. - ratified title
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## Version chain
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The bill's text revisions, in order — the diff chain from filing to enrollment.
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1. **Filed** (filed) — [source](https://www.scstatehouse.gov/sess124_2021-2022/bills/3166.htm)
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2. **12/9/2020** (committee substitute) — [source](https://www.scstatehouse.gov/sess124_2021-2022/prever/3166_20201209.htm)
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3. **2/25/2021** (committee substitute) — [source](https://www.scstatehouse.gov/sess124_2021-2022/prever/3166_20210225.htm)
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4. **5/10/2022** (committee substitute) — [source](https://www.scstatehouse.gov/sess124_2021-2022/prever/3166_20220510.htm)
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5. **5/5/2022** (committee substitute) — [source](https://www.scstatehouse.gov/sess124_2021-2022/prever/3166_20220505.htm)
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## Votes
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- 2nd Reading — **44–0** (pass) · upper
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- Concur in Senate Amendments — **97–0** (pass) · lower
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- Passage of Bill — **108–1** (pass) · lower
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## Sponsors
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- Anderson — primary (person)
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- Brawley — primary (person)
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- Cobb-Hunter — primary (person)
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- G.M. Smith — primary (person)
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- Govan — primary (person)
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- King — primary (person)
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- Robinson — primary (person)
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- Thigpen — primary (person)
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## Timeline
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The legislative action history — every referral, reading, and vote.
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- **2020-12-09** Prefiled `filing`
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- **2020-12-09** Referred to Committee on Medical, Military, Public and Municipal Affairs `referral-committee`
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- **2021-01-12** Introduced and read first time `introduction, reading-1`
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- **2021-01-12** Referred to Committee on Medical, Military, Public and Municipal Affairs `referral-committee`
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- **2021-02-25** Committee report: Favorable Medical, Military, Public and Municipal Affairs `committee-passage-favorable`
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- **2021-03-02** Member(s) request name added as sponsor: Brawley, Govan, Anderson
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- **2021-03-03** Member(s) request name added as sponsor: G.M.Smith
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- **2021-03-03** Read second time `reading-2`
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- **2021-03-03** Roll call Yeas-108 Nays-1
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- **2021-03-04** Read third time and sent to Senate `passage, reading-3`
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- **2021-03-04** Introduced and read first time `introduction, reading-1`
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- **2021-03-04** Referred to Committee on Medical Affairs `referral-committee`
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- **2022-05-05** Committee report: Favorable with amendment Medical Affairs `committee-passage-favorable`
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- **2022-05-10** Committee Amendment Adopted `amendment-passage`
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- **2022-05-10** Read second time `reading-2`
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- **2022-05-10** Roll call Ayes-44 Nays-0
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- **2022-05-11** Read third time and returned to House with amendments `passage, reading-3`
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- **2022-05-12** Concurred in Senate amendment and enrolled
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- **2022-05-12** Roll call Yeas-97 Nays-0
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- **2022-05-18** Ratified R 197
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- **2022-05-23** Signed By Governor `executive-signature`
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- **2022-06-01** Effective date 05/23/22
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- **2022-06-01** Act No. 206
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## Source
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OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/7d1087bb-c08a-4b2c-b4e1-463cb9fad444`. Confidence: reported (aggregated from official South Carolina legislature records).
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