Fabio
109 lines
6.1 KiB
Markdown
109 lines
6.1 KiB
Markdown
---
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type: "Bill"
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title: "GENETIC PRIVACY-INSURANCE"
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description: "Amends the Genetic Information Privacy Act. Provides that long-term care and life insurance policies are among those for which an insurer may not seek information derived from genetic testing. Removes language specifying that a provision prohibiting an insurer from using or disclosing protected health information that is genetic information for underwriting purposes does not apply to insurers issuing long-term care policies."
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jurisdiction: "us/states/il"
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legislature: "Illinois General Assembly"
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session: "101st"
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identifier: "HB 2189"
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citation: "Illinois HB 2189 (101st)"
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classification: ["bill"]
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subjects: []
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status: "enacted"
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primary_sponsors: []
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version_count: 3
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action_count: 41
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vote_count: 2
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first_action: "2019-02-07"
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last_action: "2019-07-26"
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source: "openstates"
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source_identifier: "ocd-bill/0f1f3207-3adc-479d-9da6-6bcd676dc68c"
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source_url: "http://ilga.gov/legislation/BillStatus.asp?DocNum=2189&GAID=15&DocTypeID=HB&LegId=117925&SessionID=108&GA=101"
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source_hash: "01a6321daec57a6057049264fc225f0a6ddcdb7fd247e7db323480f087486785"
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vintage: "2026-07-01"
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source_snapshot: "https://data.openstates.org/daily/2026-07-01/public.pgdump"
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retrieved_at: "2026-07-06"
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confidence: "reported"
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tags: ["legislation", "bill", "us-il"]
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---
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# Illinois HB 2189 (101st) — GENETIC PRIVACY-INSURANCE
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Amends the Genetic Information Privacy Act. Provides that long-term care and life insurance policies are among those for which an insurer may not seek information derived from genetic testing. Removes language specifying that a provision prohibiting an insurer from using or disclosing protected health information that is genetic information for underwriting purposes does not apply to insurers issuing long-term care policies.
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## Version chain
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The bill's text revisions, in order — the diff chain from filing to enrollment.
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1. **Introduced** (filed) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=10100HB2189&GA=101&SessionId=108&DocTypeId=HB&LegID=117925&DocNum=2189&GAID=15&SpecSess=&Session=&print=true)
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2. **Engrossed** (committee substitute) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=10100HB2189eng&GA=101&SessionId=108&DocTypeId=HB&LegID=117925&DocNum=2189&GAID=15&SpecSess=&Session=&print=true)
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3. **Enrolled** (enrolled) — [source](http://ilga.gov/legislation/fulltext.asp?DocName=10100HB2189enr&GA=101&SessionId=108&DocTypeId=HB&LegID=117925&DocNum=2189&GAID=15&SpecSess=&Session=&print=true)
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## Votes
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- Third Reading — **56–0** (pass) · upper
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- Third Reading — **106–0** (pass) · lower
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## Sponsors
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- Allen Skillicorn — cosponsor (person)
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- Antonio Muñoz — cosponsor (person)
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- Carol Ammons — cosponsor (person)
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- Gregory Harris — cosponsor (person)
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- Jennifer Bertino-Tarrant — primary (person)
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- Jonathan Carroll — cosponsor (person)
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- Natalie A. Manley — primary (person)
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- Rachelle Crowe — cosponsor (person)
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- Steve Stadelman — cosponsor (person)
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## Timeline
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The legislative action history — every referral, reading, and vote.
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- **2019-02-07** Filed with the Clerk by Rep. Natalie A. Manley `filing`
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- **2019-02-07** First Reading `reading-1`
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- **2019-02-07** Referred to Rules Committee `referral-committee`
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- **2019-02-19** Added Co-Sponsor Rep. Gregory Harris
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- **2019-02-19** Assigned to Insurance Committee `referral-committee`
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- **2019-02-28** To Special Subcommittee (INS)
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- **2019-02-28** House Committee Amendment No. 1 Filed with Clerk by Rep. Natalie A. Manley `amendment-introduction`
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- **2019-02-28** House Committee Amendment No. 1 Referred to Rules Committee `referral-committee`
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- **2019-03-05** House Committee Amendment No. 1 Rules Refers to Insurance Committee
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- **2019-03-12** House Committee Amendment No. 1 Recommends Be Adopted Subcommittee/ Insurance Committee; by Voice Vote `committee-passage-favorable`
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- **2019-03-12** Recommends Do Pass as Amended Subcommittee/ Insurance Committee; 003-000-000 `committee-passage`
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- **2019-03-12** Reported Back To Insurance Committee;
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- **2019-03-13** Added Chief Co-Sponsor Rep. Jonathan Carroll
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- **2019-03-13** Chief Co-Sponsor Changed to Rep. Jonathan Carroll
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- **2019-03-19** House Committee Amendment No. 1 Adopted in Insurance Committee; by Voice Vote `amendment-passage`
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- **2019-03-19** Do Pass as Amended / Short Debate Insurance Committee; 019-000-000 `committee-passage`
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- **2019-03-21** Placed on Calendar 2nd Reading - Short Debate
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- **2019-03-26** Second Reading - Short Debate `reading-2`
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- **2019-03-26** Placed on Calendar Order of 3rd Reading - Short Debate
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- **2019-03-28** Added Chief Co-Sponsor Rep. Allen Skillicorn
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- **2019-03-28** Third Reading - Short Debate - Passed 106-000-000 `reading-3, passage`
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- **2019-03-28** Added Chief Co-Sponsor Rep. Carol Ammons
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- **2019-04-03** Arrive in Senate `introduction`
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- **2019-04-03** Placed on Calendar Order of First Reading April 4, 2019 `reading-1`
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- **2019-04-04** Chief Senate Sponsor Sen. Jennifer Bertino-Tarrant
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- **2019-04-04** First Reading `reading-1`
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- **2019-04-04** Referred to Assignments `referral-committee`
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- **2019-04-24** Assigned to Judiciary `referral-committee`
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- **2019-05-02** Do Pass Judiciary; 009-000-000 `committee-passage`
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- **2019-05-02** Placed on Calendar Order of 2nd Reading May 7, 2019
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- **2019-05-14** Added as Alternate Co-Sponsor Sen. Rachelle Crowe
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- **2019-05-16** Second Reading `reading-2`
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- **2019-05-16** Placed on Calendar Order of 3rd Reading May 17, 2019
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- **2019-05-16** Added as Alternate Co-Sponsor Sen. Steve Stadelman
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- **2019-05-21** Added as Alternate Co-Sponsor Sen. Antonio Muñoz
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- **2019-05-21** Third Reading - Passed; 056-000-000 `reading-3, passage`
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- **2019-05-21** Passed Both Houses
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- **2019-06-19** Sent to the Governor `executive-receipt`
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- **2019-07-26** Governor Approved `executive-signature`
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- **2019-07-26** Effective Date January 1, 2020
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- **2019-07-26** Public Act . . . . . . . . . 101-0132 `became-law`
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## Source
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OpenStates / OpenCivicData bulk snapshot [2026-07-01](https://data.openstates.org/daily/2026-07-01/public.pgdump); origin `ocd-bill/0f1f3207-3adc-479d-9da6-6bcd676dc68c`. Confidence: reported (aggregated from official Illinois legislature records).
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